I'm In A Support Group For Queer Adults With Disabilities (before I Joined I Didn't Even Know There *were*

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your bare minimum isn’t actually that bare or minimum. my dad once told me that there’s nothing in this world that’s easy and that’s true tbh. everything we do takes energy, time, and effort. even the little things. if you feel like you’re not doing enough please try to think about your circumstances and what’s currently available to you: chances are, there’s something that’s diverting or otherwise draining you. and to pull away from that and get something done regardless? well, i think that’s really admirable! please try to take pride in the things you do accomplish in a day, no matter how small or trifling you perceive them to be. you can’t be proud of your growth if you don’t notice where you already are!

Just saw a spicy hot take in the notes of an ADHD post that was like “adhd isn’t a mood disorder stop making excuses” from a supposed fellow ADHD person and like yes, ADHD is not exclusively a mood disorder. It’s 4 of them hiding under a trench coat with 15 other neurological disorders. And also:

ID, a screen grab from an article that reads: About 70 percent of adults with ADHD report problems with emotional dysregulation, going up to 80 percent in children with ADHD. In clinical terms, these problem areas include:

-Irritability: issues with anger dysregulation – “tantrum” episodes as well as chronic or generally negative feelings in between episodes.

-Lability: frequent, reactive mood changes during the day.

-Recognition: the ability to accurately recognize other people’s feelings. Individuals with ADHD may tend to not notice other people’s emotions until pointed out.

-Affective intensity: felt intensity – how strongly an emotion is experienced. People with ADHD tend to feel emotions very intensely.

-Emotional dysregulation: global difficulty adapting emotional intensity or state to situation.

/end ID. (Source)

Like not to be wildly and irrationally peeved about this, but bully for you if you don’t experience this as part of your ADHD, but over 70% of us do and saying we’re making excuses or not trying hard enough is the exact same shit neurotypicals say to invalidate us, and causes us real harm. Please don’t do the same thing. Trauma inflicted by neurotypicals is a huge part of why living with ADHD is so difficult. We don’t need it from within our own community too.

We all experience this shit show disorder differently. It’s a spectrum of one size fits no one, not a cookie cutter mold to fit into.

And yeah, you know what, this shit isn’t an excuse to behave badly, but you know what, knowing emotional dysregulation is a symptom of ADHD helps you to treat it and work on getting a handle on it. Knowing the reason it feels like the world is ending in your chest because something bad happened, and knowing it’s because your gremlin brain is perpetually starved for dopamine so there’s no cushion for the raw emotional feedback currently happening can help you, with practice, to curb the impulsive desire to do something rash or harmful.

I mean, fuck, there’s a reason for why suicide is so prevalent in ADHD, and I’m going to go out on a limb and say that impulsivity and severe emotional dysregulation is a part of that.

Knowing that the feeling will end and isn’t an accurate reflection of the situation, overwhelmingly painful as it is in the moment, can help. It does help. So denying this aspect as part of ADHD? Not helpful, and you need to take some time to sit with your thoughts and see why you want to distance yourself so much from this to the point of invalidating others.

I have trouble taking care of my teeth because everything that involves doing that is a sensory nightmare. I decide to do some research to see if there's anything I can do about this. The results?

"How to make your autistic child brush their teeth"

"Autistic Children and Sensory issues relating to tooth brushing"

"How to get your little shit to brush his fucking teeth"

Like, yeah Google, thanks, that really helps. And like, even if I was a child, some of the advice seemed... unhelpful. Like, doing a dance and singing a song while brushing your teeth? Even for a kid, I don't think that would help distract from a sensory experience as intense as brushing your teeth. Like, the extremely intense and unpleasant flavor, the intense feeling of the brush against your teeth scraping across it, even mouthwash has such an intense and disgusting flavor that I have difficulty keeping it in my mouth for more than a few seconds. I wish there was SOMETHING that could be done.

Every person need to be taught disability history

Not the “oh Einstein was probably autistic” or the sanitized Helen Keller story. but this history disabled people have made and has been made for us.

Teach them about Carrie Buck, who was sterilized against her will, sued in 1927, and lost because “Three generations of imbeciles [were] enough.”

Teach them about Judith Heumann and her associates, who in 1977, held the longest sit in a government building for the enactment of 504 protection passed three years earlier.

Teach them about all the Baby Does, newborns in 1980s who were born disabled and who doctors left to die without treatment, who’s deaths lead to the passing of The Baby Doe amendment to the child abuse law in 1984.

Teach them about the deaf students at Gallaudet University, a liberal arts school for the deaf, who in 1988, protested the appointment of yet another hearing president and successfully elected I. King Jordan as their first deaf president.

Teach them about Jim Sinclair, who at the 1993 international Autism Conference stood and said “don’t mourn for us. We are alive. We are real. And we’re here waiting for you.”

Teach about the disability activists who laid down in front of buses for accessible transit in 1978, crawled up the steps of congress in 1990 for the ADA, and fight against police brutality, poverty, restricted access to medical care, and abuse today.

Teach about us.

if you’re a mentally ill adult, especially if you’re psychotic or have bipolar, i highly recommend you look into getting a psychiatric advance directive. basically they’re a form you can fill out where you can specify what kind of treatment you want and don’t want in the case that you ever get legally declared incompetent. normally, getting declared incompetent means that psychiatrists take away your right to make decisions about your mental health care. for example, they can force you to take medications you don’t want or institutionalize you longterm without your consent. also the state appoints someone they choose to legally “consent” in your place.

what a psychiatric advance directive does is put limits on what the psychiatrists assigned to you can do. you can appoint your own person to be your legal representative, someone you trust who knows you and cares about you. you can also specify what hospitals you don’t want to be sent to or what doctors you don’t want to see or medications you don’t want to take or whether or not you consent to electroconvulsive treatment. you can also say what you do want, like i put down that they decided to institutionalize me, i wanted it to be at a specific psych ward i’d already been to and had a not terrible time at. and now, if i ever get declared incompetent, psychiatrists are legally not allowed to put me back on the meds that gave me a seizure. 

nobody wants to be legally declared incompetent. it’s really scary to think about, but it does happen, especially to people with psychosis or bipolar disorder. it’s better to have legal safeguards in place ahead of time and not need them than to get declared incompetent and not have an advance directive

Fuck this one hits home.

Simone Biles saying “Mental health is more important than sports” on the biggest platform she could have possibly done it from is why she’s incredible, actually