I've been looking into the job market and it seems like the only viable career path nowadays is becoming a demon swordsman.
chronic pain diagnoses are all like yeah we don't know what this is or why it happens. we also don't know how to treat it. good luck out there soldier
Hey, it’s ok to not be a “productive member of society.”
Some people are housebound. Bed bound. Some people physically can’t eat, shower, or use the toilet without the assistance of a caretaker. Some people don’t have the spoons to get out of bed in the morning, let alone work a 9-5 job in this capitalist hellhole.
You’re not lazy. You’re not less than.
And this is coming from a disabled person with chronic pain who can leave the house and walk (with some pain) without mobility aids.
You deserve to take up space. You deserve to cost money. You deserve to be here without feeling guilty just because you can’t give back in the traditional way.
You’re worth it, hun. 🫶🏼
Reached the point of chronic illness where im becoming excessively bitter whenever i see people around me being capable and living without pain, saw 2 people walking a dog outside my window and had to take a breather 😭
If you feel the need to gift your chronically ill friends things for whatever reason, here is my "starter pack/gift guide"
A pack of their favorite gateorade flavor, great for hydration, tastes good, easy and quick. Body armor, prime, etc are also good options if they dont like gateorade
Some of their favorite powder electrolytes. Liquid IV and drip drop are some good options. There are also the generic brand electrolyte packets at Walmart, I think they taste good. There is also bouy if they like the squeezy ones, i dont but if they do bouy has an unflavored one as well as like 30 different options
Kt tape. Regular, extreme strength, cooling, heating, literally any type of kt tape. They can probably find a use for it. Most ((not all but most)) chronically ill people, at least the ones I know, suffer from some type of joint issues and kt tape is a life saver. On this vein, I would stray away from braces unless you know what joints/muscles specifically give them the most trouble, kt tape is a bit more versatile
Compression socks, there are cute ones on Amazon, Walmart, many small business sell some nice ones. I would go for a higher compression, or at least upwards of 15 mmhg, for the best chance of them being worth it
Temperature devices, im putting these in the same bullet point bc it felt unnecessary to put ice packs and heating pads in different points. Ice packs are really nice for swelling and heating pads are really good for pain. Both are a good option ALWAYS. I will say, the reusable ice packs give you a better bang for your buck than the single use crack and use ones.
Their comfort foods. A bit of an ed tw for this bullet point, but i have noticed quite a few of my fellow chronic illness sufferers deal with an ed, and while it isnt all of us, those who do probably find it a bit extra hard to eat on rough days. So comfort foods/snacks
If they have to take their blood sugar for things, lancets. They usually come in like 100 packs for really cheap, like under 5 bucks cheap. Just check to see the brand of their lancing pen before you buy them tho
Batteries, it sounds weird but stay with me. Do you know how many medical devices I have that require batteries?? MANY. My hr monitor, my glucose monitor, my blood pressure monitor- like bro, a pack of triple a batteries will mean more than you think trust
A weighted blanket/stuffie. Stuffies are cute and easy to carry around, blankets are nice when you need some extra weight
If they have a service animal, an accessory for their vest/leash/collar could be nice
One of those reacher things that grab things for you. I want one of those. When your stuck in bed, cant move, ill, in pain and suddenly drop your mother fucking phone cord off the side of your bed and now you have to MOVE and grab it- 10/10 worst experience. One of those grabby things would be amazing
A migraine cap. I got mine from target but I have seen them at Walmart, on Amazon, weirdly one on depop, some on shein, some at places like tj maxx, etc. Migraine caps are especially wonderful for those days where your shut in your room, blinds drawn, fans off, three ice packs on you in constant rotation, barely mobile and for some gods forsaken reason your blinds wont close all the way so the light keeps catching your eyes and making you want to lose your ever loving shit bc you cant move to fuck with them. And more normal experiences Im sure lmao
If your short on funds, just being there with them, listening to them, watching a movie, body doubling so they can get some help with chores, running errands with them, literally anything so they remember their a human person with human feelings that you love and care abt. Who knows, it might help you feel better too
More than anything, listening to what they want and need is a bigger gift than most think
why is tumblr recommending me. my grown ass. posts made by sick children
okay but why are so many medical professionals focused solely on getting their patients back to their jobs and not actually helping the patient feel better. like you will be literally unable to digest food or eat or do anything and they'll be like "that's not good we gotta get you BACK to WORK!!!!!!!!" and so they drag their heels and take up a bunch of time and give you treatments that don't work or take forever to give you ones that do and when you tell them. hey i still don't feel good the first thing is "BUT YOUR JOB!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!"
fuck my stupid job. i'm dying. i'm a person not a walking job. help me. a lot of medical professionals will refuse to do their job and instead lecture you about being unable to go to your job instead. unreal.
blogging from the depths of autistic burnout • he/him • adult
300 posts