Let's talk mobility aids!
Canes are for when you need to take a little bit of weight off of one side of your body, need a little help with balance, or need a little extra stability when you walk. It's an easy mobility aid to find and get, and it's pretty easy to figure out how to use. Have the cane sized so the handle sits at wrist level, then hold it on the opposite side to the one that hurts. Match your cane strikes to the steps on the hurt side. It will hurt your arm, elbow, and shoulder sometimes, but having a properly sized cane will help.
Rollators are kind of the "next step up" in support. They come with more restrictions, you get limited to ramps and stuff, but they're also the least restrictive wheeled mobility aid because they're light and easy to pick up and toss around. They also have a seat a lot of times and a basket so you don't need to carry stuff. They're for when you need a place to rest, something to lean on when you walk, better balance assistance than a cane, and less weight bearing than a cane. I also found that it helped me with fatigue quite a bit. There's two main kinds, euro style like the first, and regular like the second. There are other fancier ones but I'm covering the basics here.
Rollators are my favorite mobility aid and I've used everything from canes to a fancy high grade power chair. They're just the perfect balance of help and freedom. They provide so much support for how far they go.
Arm crutches are pretty neat! They're a lot more ergonomic than a cane. In fact, some people use a single arm crutch as a cane. They distribute the weight a little better, so it's not all on your wrists, and they support you better than a rollator can. The major cons I found are that they take two hands to use so you can't carry much and I had a really hard time trying to learn to walk with them. A lot of people who use forearm crutches have other mobility aids and use the forearm crutches when they want to or need to walk.
These are for when walking becomes more difficult than pushing a wheelchair. There's no weight being put on your legs and feet and depending on your needs, you can get really specific with your adaptations if you have a custom wheelchair verses a standard wheelchair. My first custom chair looked like a monster truck because i took in the woods and gravel, my second custom chair after I got sicker has a head rest, a backrest that holds me up, and a little electric box that I can attach that helps me push. The difference between getting a standard and custom wheelchair is dependent on how much money the user has, what kind of needs they have, and what kind of medical access they have. (One is not more "real" than the other.) I highly recommend getting a cushion for under your butt if you have a standard chair without a cushion, I used a standard full time for 6 months and a cushion made a huge difference.
Mobility scooters are for people who can't walk long distances, but can still walk with the help of a cane or unassisted. If you can walk around your house, but not really much else, a mobility scooter might be the aid for you! There's a lot of different styles and battery life lengths and handling abilities so try a few different scooters out if you can.
Powerchairs come in a couple different types or "groups" depending on your needs. Group 1 is the kind of chair you're probably most familiar with. It's basically for someone who needs a powerchair to get around their house, the doctors, office, and grocery store. You can't do any custom seat cushions or anything, but it's for people who don't need it. Think of like... someone who can walk pretty okay still, it just hurts to walk or they're off balance or a little weak feeling. A lot of times more elderly people will use these, if you're more active look into group 2
Group two chairs are little more durable, a little more stable, sometimes you can switch the captains seats out for custom seating... They're what a full time powerchair user would use if they don't need specialty functions like tilt or recline. They also often have 6 wheels rather than 4 like the group 1 chairs have.
Group 3 powerchairs are reserved for specific diagnoses like muscular dystrophy, ALS, and other severe neurological and neuromuscular illnesses. These are also called "rehab" chairs because they're for making sure severely disabled people have quality of life. The tilt function is for pressure relief, though you can also get things like elevation so you can raise and lower your chair, and some of them can recline flat. There are other avenues of moving grade 3 power chairs beyond the joystick as well in case someone can't use their hands or doesn't have them. (Head controls, torso controls, and straw controls called sip and puff are alternatives.) They can go on a little worse terrain than group 1 and two chairs and go a little farther, but if they get stuck they weigh 350 lbs and it's awful.
There's a few other types of mobility aid that I don't know enough about, like ankle foot orthotics and gait trainers, but these are the basic "mobility aid" most people will come across.
[Image ID: A black screened meme with Bugs Bunny in a tuxedo with his arms crossed over him, white text reading "I wish all people with disabilities that aren't talked about as much a very pleasant evening"] [Image ID 2: A black screened meme with Bugs Bunny in a tuxedo with his arms crossed over him, white text reading "I wish all people with chronic vertigo and/or any other condition that may cause one to be dizzy a very pleasant evening"]
Happy disability pride month
Recently saw an insta vid where a musician was singing lyrics that described their intrusive thoughts as a person with OCD, and in the comments every so often there would be people writing like "bro what is this 🤨🤨" and "keep this between you and your therapist dont post it on the internet" and it just further fueled my belief that OCD symptoms and intrusive thoughts need to be talked about more because a majority of the struggle with the disorder is the shame surrounding its symptoms. OCD is not able to be easily romanticized or 'quirky'fied like other disorders or neurodivergencies have been*, and as a result its symptoms are more quickly met with disgust or repulsion.
Other people in the comments were thanking OP because it captured the struggle of real intrusive thoughts instead of impulsive ones. Impulsive thoughts are more of the 'I'm gonna dye my hair randomly on a thursday night' thoughts vs the intrusive 'what if I drove my car into that family and suddenly killed us both' thoughts, the latter of which make OCD as a disorder truly debilitating. And the people that immediately assign bad morals to intrusive thoughts? They only further condemn people with OCD to never wanting to talk about the symptoms they've already been struggling with shame about.
I feel it needs to be made more blatantly explained to the public that OCD intrusive thoughts aren't desire based. They're fear and disgust based. You fear hurting anyone so badly your mind can't stop thinking about what if you hurt someone. You fear molesting anyone so you never want to even touch anyone. Your mind fixates on the 'what ifs' and distorts them into the idea that, because you think this way, you must want to act this way--when the reality is the exact opposite.
If a person with OCD ever confides to you one of their intrusive thoughts and you feel a knee-jerk reaction of disgust towards them, it needs to be reiterated that:
1. the person does not want to be thinking about this, their brain is legit hardwired to make those thoughts pop up
2. the person themselves also feels this disgust, often intensely, and they very likely resent themselves for ever thinking it
and
3. they have no desire to enact the intrusive thought, because its intrusive nature hinges on the person's fears and dislikes.
*And to clarify what I mean by romanticization and 'quirk'-ifying, I do not mean to imply that romanticizing any disorder or condition is inherently a good thing. It's only to state that conditions like anxiety and ADHD have been made such common/'trendy' topics recently that they're less taboo to speak about--leading to more people talking about their struggles with it, and helping others realize they might have it too and aren't alone. Because certain OCD traits aren't as marketable (obviously) a lot of those with it are left rather isolated.
Sometimes being disabled feels like you’re surrounded by people with superpowers, and you’re the only regular human.
Because I don’t really feel like I can do less—I feel normal. I’m so in tune with my own body, my own abilities, my own experience. I’ve lived this way for so long.
But then I look at other people, and see how much more they can do, their stamina, their resiliency, and I’m…baffled. Befuddled. Astonished. They seem downright superhuman compared to me. They seem like goddamn superheroes.
Autistic people’s relationship with sex is treated so horribly in so many different ways it’s genuinely fucking frustrating. Whenever a character is depicted with autistic traits a thousand weirdos manifest into existence to say that their cute little autism blorbo “doesn’t know what sex is and must be protected” but over in real kink circles with high populations of autistic people (furry porn and shit) they suddenly become the crazy degenerate perverts. To the greater society at large autistic people expressing their sexuality aren’t allowed to be considered normal, we either have to be sterile and nonexistent or a group of freaky sexual deviants. Give me a fucking break dude.
There's only one real way to categorise disorders and it's when you google it and the first results fit into one or more of the following categories:
1. "Is your child-" "Does your child-" "How to cope with the burden of being a parent for-"
2. "How to get better: Step One: have a lot of money!" "How to get better: Step One: simply stop having it!"
3. "10 Ways To Spot Sickopaths With This Disorder So You Can Protect Yourself" "The Bad People Disease -by Dr. Eugene X."
btw if you can't, won't, or don't want to brush your teeth for any reason, i extremely strongly recommend orbit gum.
it's sugar free and ideal to chew it after eating--when you do that it helps prevent cavities according to the american dental association :3 your teeth will feel and be cleaner and also like it's fun to chew gum
[personally a fan of their sweet mint flavor because it's minty without being painful/overpowering but there's also a lot more of them--bubblemint's good too]
misogyny in relation to psychiatry involving treatment and diagnosis of autism is a completely valid conversation to have but i've seen some tiktok girlies acting like more 'problematic' behaviors such as violence in relation to autism are a Boy Thing and a result of entitlement when that's just...not how autism works. of course there are some differences in presentation based on gender roles influencing parenting but there are still girls who have the exact same issues regardless because the truth is not everyone ends up in the same place even when raised a certain way. there is so much bioessentialism in discussions of mental health that are is harmful and ironically incredibly misogynistic--like it's "boys will be boys" rhetoric no matter how progressive you make it sound.
I need non autistic people to realise meltdowns are a real debilitating thing that has a serious effect on your mental and physical health NOWWWWW!!! The way its been trivialized and lessened pisses me the fuck off. It's not a tantrum and it doesn't come from "being too weak-willed" it's painful and it's embarrassing AND MOST OF ALL IT'S INVOLUNTARY!! Don't claim to be an ally to autistic or disabled people and then make fun of people who have meltdowns. Literally get the hell out of my sight
I will be the first to admit that I’m not a good friend. I forget people exist, therefore I don’t text them. I don’t call them. I don’t acknowledge them.
I forget people are…people. To me most the time, everyone is just people that float around. People that help me as I float too. It sucks. I wish I saw people as more. I wish I had friends.
I’ll be the first to admit that I have disorders that cause me to not be a good friend. They aren’t excuses, but explanations. I try my best, yes. But sometimes my best just isn’t good enough. That’s ok. I’m content with that at the moment. However, I work everyday to get better and be a better friend. A better brother. A better person.
[Header Image ID: The disability pride month. It's dark gray with five diagonal stripes, in the following colors: red, yellow, white, blue and green. ]
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