Please do not laugh if I misspell something or if my device pronounces a word wrong. I am doing my best. It tends to make me feel self-conscious about using my device, which can make it harder for me to communicate effectively in the future.
I understand that mispronunciations and misspellings can be funny in some contexts, but when it's happening to me, it's not funny at all. It's actually quite embarrassing and it makes me feel like my communication efforts are not being taken seriously. Communication is such an important part of human interaction, and when you have to rely on a device to do it, it can already feel like a barrier. So when people react negatively to something that's already a struggle for me, it can be really discouraging.
I'm not writing this to shame anyone or make anyone feel bad. I just wanted to raise awareness about how these little moments can have a big impact on AAC users.
notes for my impostor syndrome:
• no, it's not painful to walk for abled-bodied people
• no, healthy people don't usually use every chance they get to lean against walls or sit down
• no, ableds don't dream about shower stool
• no, ableds don't celebrate days when they're not in pain. because usually they're not in pain
• no, ableds don't want to stop walking mid-way, lay down on the ground, curl up and cry and whine from pain
• no, ableds aren't exhausted by their own bodies 24/7
p e r r y hkkgfdshk
sure there’s a ramp, but is it steep? is there a curb at the top? is the ground uneven? do i need a key for the elevator? are the aisles and doorways wide enough? do i have room to turn? is there furniture and clutter in my way? is the carpet difficult to wheel on? can i open the doors myself?
accessibility to wheelchairs is more than just a ramp.
just because my aac device is a phone, doesn't mean it is any less crucial that i have it with me.
just because you understand what it is like to have your phone die. and understand that you've lost access to important text and call communication, as well as photos, bank stuff, social media etc, does NOT mean you get to say you know what it's like when my phone dies.
yeah, your phone has emotional and functional significance to you,
🌹but this is my fucking voice.
“glued to his phone” “so much screen time” "get off your phone and have a real conversation for once"
🌹this is my voice.
uber excited to steal words back from companies that redefined them
Blackout Poem Made of Disability Benefits Applications and Denial Letters:
[Image ID: A blackout poem. The edges of the black are straight and rectilinear. I will indicate breaks in the line using the slash symbol /. Some of the excerpts include boxes where you could draw a check mark. I will indicate these by writing (box). The poem goes
Answer every question. / Please tell us if you want us to return them to you. / Select the heaviest weight lifted. / Using fingers to touch, / (Box) One hand (Box) Both hands / Using hands to seize, (Box) One hand (Box) Both hands / reduction / refusal / Termination / Penalty / You can give us more facts to add to your file. / You do not meet with the person who decides your case. / Notice of Decision — Unfavorable / Disabled worker’s name / Date given when disability began / Date of death. /end ID]
The final three lines are from denial of benefits paperwork for workers who died before the end of the mandatory five month waiting period. How many of those deaths are connected to poverty? I don't know, but I can guess.
I am getting myself those “big-ass” headphones today and I am so excited I can’t stop happy flapping because I finally will be able to attend class regularly with them on! EEEEEEk- I even am going to put ocean themed stickers on them since that’s my huge special interest right now SPECIFICALLY BALEEN WHALES OMG IM SO EXCITED
don’t be embarrassed or afraid to make life easier for yourself :
- cut your hair if the texture sets you off or if it’s too much to take care of
- get that shower chair or that wheelchair or some big-ass headphones
- don’t shower every day
- order takeout if your too tired to make food yourself
- take yourself out of situations if they’re overwhelming
- do online school instead of in person
to take allistics’ words “this is your life, do what you want with no apologies”
For anyone who has a disability or is in a situation that makes eating more difficult, I highly recommend this product:
I have extreme difficulty cooking, touching things, and using plates/cutlery due to my OCD and phobia. I have to rely heavily on premade food like ready-to-eat products made at my grocery store, frozen dinners, etc. This product I recently discovered has been an amazing help.
There’s only four of these breakfast sandwiches in the container, but they’re a pretty good size and very filling. I can eat one of these sandwiches and be good for hours. The only thing you need to make them is a microwave. They cook for only a minute and thirty seconds, which is super fast!
They require no preparation other than slightly opening the end of the package. You actually cook the sandwich right in the wrapper it’s stored in. This means that YOU DO NOT NEED A PLATE OR CUTLERY! You can use the wrapper you cooked it in to hold the sandwich as you eat it! So it is easy and quick to make, requires no preparation, it doesn’t make a mess, there’s no dishes to clean, you barely have to touch anything, and it tastes seriously good!
There are two versions of this product that both use different ingredients, but to me they tasted the same. The only real difference to me was that this sandwich uses turkey sausage and the other sandwich uses chicken sausage. This brand also makes some other similar breakfast items that are also very easy, but they require a bit more effort. The frittatas have to be put on a plate, and the breakfast burrito needs to be wrapped in a paper towel. I store paper plates in my fridge as an accommodation to help me still occasionally use plates, so I sometimes buy the frittatas. The breakfast burrito tastes so good and is a little easier for me to prepare with the paper towels than the frittatas that require a plate. But the breakfast sandwiches are probably the star of the show.
I know these sandwiches can’t fill someone’s entire dietary needs and that they won’t be useful for every disability that makes eating more difficult, especially disabilities like sensory disorders since they’re so individual, but I hope this recommendation can still help someone. If you have some days where cooking, touching things, standing for a long time, etc. is too hard, then this breakfast sandwich might be useful for an easy, filling, and tasty meal. The main obstacle of this product is that the price is about $6. Buy it on sale if you can. Since I tend to eat this as an entire dinner/snack, it’s not a terrible price since it averages out to $1.50 per meal. I’ve also accepted that food is just something I personally have to save more of my money for so I can spend more money on food that I can actually eat. Food that my disorders will allow me to eat is what I splurge on.
I hope this suggestion might help someone!
Click here for previous/future chapters if you're on a laptop/browser~
Or follow #paupersprince for updates on app :3 I will make webcomics readable on Tumblr somehow lol
A little autistic lord has a melt down- but maybe one kind kid can help, where unempathic adults have failed.
i want to talk about the ~feeling~ of making art, forever. drawing these kinda lines is very soothing to me. what it looks like is not as important as the process. that’s why kids are the best artists because they don’t overthink it and just make. they don’t usually ask for an eraser when they want to draw and they’re not building up a whole image in their head before they even start. they’re in the moment, as honest as possible
I go by Bisho. I'm chronically ill, Autistic, and Physically Disabled. I love Horror Games and Kirby so much. I suck at social interactions online and in person.
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