I realized the other day that the reason I didn't watch much TV as a teenager (and why I'm only now catching up on late aughts/early teens media that I missed), is because I literally didn't understand how to use our TV. My parents got a new system, and it had three remotes with a Venn diagram of functions. If someone left the TV on an unfamiliar mode, I didn't know how to get back to where I wanted to be, so I just stopped watching TV on my own altogether.
I explained all this to my therapist, because I didn't know if this was more related to my then-unnoticed autism, or to my relationship with my parents at the time (we had issues less/unrelated to neurodivergency). She told me something interesting.
In children's autism assessments, a common test is to give them a straightforward task that they cannot reasonably perform, like opening an overtight jar. The "real" test is to see, when they realize that they cannot do it on their own, if they approach a caregiver for help. Children that do not seek help are more likely to be autistic than those that do.
This aligns with the compulsory independence I've noticed to be common in autistic adults, particularly articulated by those with lower support needs and/or who were evaluated later in life. It just genuinely does not occur to us to ask for help, to the point that we abandon many tasks that we could easily perform with minor assistance. I had assumed it was due to a shared common social trauma (ie bad experiences with asking for help in the past), but the fact that this trait is a childhood test metric hints at something deeper.
My therapist told me that the extremely pathologizing main theory is that this has something to do with theory of mind, that is doesn't occur to us that other people may have skills that we do not. I can't speak for my early childhood self, or for all autistic people, but I don't buy this. Even if I'm aware that someone else has knowledge that I do not (as with my parents understanding of our TV), asking for help still doesn't present itself as an option. Why?
My best guess, using only myself as a model, is due to the static wall of a communication barrier. I struggle a lot to make myself understood, to articulate the thing in my brain well enough that it will appear identically (or at least close enough) in somebody else's brain. I need to be actively aware of myself and my audience. I need to know the correct words, the correct sentence structure, and a close-enough tone, cadence, and body language. I need draft scripts to react to possible responses, because if I get caught too off guard, I may need several minutes to construct an appropriate response. In simple day-to-day interactions, I can get by okay. In a few very specific situations, I can excel. When given the opportunity, I can write more clearly than I am ever capable of speaking.
When I'm in a situation where I need help, I don't have many of my components of communication. I don't always know what my audience knows. I don't have sufficient vocabulary to explain what I need. I don't know what information is relevant to convey, and the order in which I should convey it. I don't often understand the degree of help I need, so I can come across inappropriately urgent or overly relaxed. I have no ability to preplan scripts because I don't even know the basic plot of the situation.
I can stumble though with one or two deficiencies, but if I'm missing too much, me and the potential helper become mutually unintelligible. I have learned the limits of what I can expect from myself, and it is conceptualized as a real and physical barrier. I am not a runner, so running a 5k tomorrow does not present itself as an option to me. In the same way, if I have subconscious knowledge that an interaction is beyond my capability, it does not present itself as an option to me. It's the minimum communication requirements that prevent me from asking for help, not anything to do with the concept of help itself.
Maybe. This is the theory of one person. I'm curious if anyone else vibes with this at all.
-> A visual guide
[ID: a graphic with simple figures. on the left is a column of 3 identical images of a wheelchair user sitting in front of a pedestrian. on the right are examples of do's and don'ts. the first don't is a person attempting to step over the wheelchair user. the second don't shows a person attempting to push the wheelchair user. the final image is a do with a person saying "excuse me" to the wheelchair user]
❌ stepping over wheelchair users
❌ pushing wheelchair users
✅ asking politely for the wheelchair user to move
stop making fun of bad people for being fat or having small dicks or being socially awkward or whatever else you seem to think is a fair target. none of that shit has anything to do with why theyre bad. i don’t care if a nazi has a stutter or a terf has thinning hair or whatever. at best youre missing the point, at worst your comments are gonna hurt vulnerable people more than they will ever affect the shitty person you’re mocking. why are you so attached to these bullshit standards anyway?
People love to talk about whether or not disabled people can work
but if you can work just fine and your disability is destroying your ability to have a life outside of work (because work takes all your energy and more)
Dead silence. Nobody cares.
apparently people are now purchasing thick water to make slimes with because of a trend on tiktok
thick water is for disabled people who can’t swallow properly. stores usually have extremely limited supplies of it.
please don’t buy thick water for fun or to make slime with. it’s literally the only way some disabled people can drink anything. It’s not a fucking toy
i love when i see another cane user/ disabled person in public and we make that eye contact of solidarity
like yes!! you are like me!! i am like you!!
can we have a conversation about how abysmal the state of "handicapped" parking spaces are in some places? ive been to two separate places in the last week that labeled a normal spot as an accessible one and just painted it blue. ive been to hospitals and doctors offices that had like 3 spots total. sometimes they're even more inconvenient than the regular spots because they were put somewhere stupid just to get away with the bare minimum. this sucks
This person said this to me over a random tag I left on a photo months ago and I don't know how to tell them I have a debilitating mental illness that makes me unable to leave my house
i know we're all sick of self-care being a marketing tactic now, but i don't think a lot of us have any other concept of self-care beyond what companies have tried to sell us, so i thought i'd share my favorite self-care hand out
brought to you by how mad i just got at a Target ad
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