So often ableds expect me to act like a perfect little inspirational angel, when in reality I’m a human with emotions like the rest of y’all.
I don’t want to have to smile after you tell me you’d kill yourself if you were in my situation.
I don’t want to grin and nod while you treat me like a child and pet my hair.
I don’t want to laugh it off when you tell me about your friend who had my condition and died.
I don’t want to generously share my deeply personal medical history with a stranger I just met on the street.
I want to cuss and call you out on your BS, not sit compliantly in my wheelchair like a sweet little angel.
your hot autistic swag has bewitched me body and soul.
me deciding to watch wwdits, good omens, and ofmd within like a 6 month period: hello lgbt community
boobs are good
chronic fatigue weaves its way into everything. people love to tell disabled people they'd love to rest as much as we do, but they fail to understand how tired we are while we rest. we are not relaxed, we are generally pretty miserable, either from pain, irritability, or fatigue- which bleeds into every aspect of your life. being too fatigued to get up off of the couch means that you're too fatigued to get to the cupboard to pull out pans to attempt to start cooking.
the steps hidden within steps that are required to do a lot of tasks related to being a "functioning adult" are daunting, there are often way too many steps necessary to make "Simple" foods or do "simple" chores for disabled people to accomplish these tasks. chronic fatigue often means that even waking up from a nap or night's rest requires time to adjust to and power through
waking up is a process for me. im often no more alert and awake hours after i've woken than I am right after doing so. caffeine does not help fatigue- at least not at safe doses, for me, anyways. many days the act of moving from my bedroom to my living room is too much. taking dishes to the sink can be too exhausting. i have began falling asleep in front of the kitchen counter while standing because i realize the amount of steps required to clean the counters, or do the dishes, or prepare a meal that all of my energy instantly bleeds away
it's okay if you feel this way too. i have been dealing with chronic fatigue my entire life and it cost me my best paying job. i lost my ability to work because of it. it's not just you being "sleepy", you are genuinely too exhausted to function. you do NOT have the energy levels other people do, and that's okay. it's okay to let yourself be tired sometimes and address that instead of trying to pretend you're not tired.
i wish you good luck. you are loved
does anyone else wish they could switch bodies with someone/give their pain to someone to see how that person reacts? like, am i being too over dramatic or is it really that bad? can they white knuckle it or are they also kneeling over in pain??
happy april second to my fellow neurodivergents :))
It is simultaneously Passover, Earth day, and lesbian visibility week.
So shout out to the Jewish, earth-loving lesbians
⭐️ they/she ⭐️ 20 ⭐️ ace lesbian ⭐️ chronically ill ⭐️ autistic ⭐️
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