Everyone With Gi Issues Deserves A Kiss On The Forehead Right Now

There was a TikTok of an (American) woman who was documenting her husband’s ICU room and expressing displeasure with the state it was in, it was generally unclean with broken equipment, rust stains, clipped flooring, things that can make a medical environment unsafe. I opened the comments expecting people to be like “Wow, that’s scary. And a huge infection risk. ICU stays often cost patients upwards of $100k and not enough of that money is going to maintenance and cleaning.” But instead it was nurses being utterly vile to this woman. Not saying “You’re right, it’s terrible that we’re forced to do our jobs in unsafe, unclean and outdated environments.” they were telling her she was a prime example of why patients’ families were the worst part of their job.

The hospital that charged my insurance $87k for a single endoscopy & colonoscopy performed on me was recently fined for having dirty equipment. If not on sanitation, if not on giving nurses and providers better wages, if not on updating the facility, where the hell did that money go? If nurses could band together to attack and criticize hospital administration and the American medical system in the way they band together to attack and criticize patients and advocates online, all of our lives could improve.

But of course it is easier to raise the sword against the vulnerable person dependent on your care, on the people often experiencing the worst day of their life when they are too frightened and in pain to treat you with courtesy. It’s easier to lash out at the patient inquiring about their medication after waiting two hours than to lash out at the people responsible for making you responsible for 30 patients at once.

I don’t think anyone blames nurses for hospital rooms being nasty. It’s not their job. It’s the job of custodial staff and maintenance. It’s the job of administration to fund those departments. It’s a problem at the top. If we could all look upwards instead of down when it comes to who we criticize and blame, we could make progress.

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Aesthetic Digital Medical Binder Notion Template

This Notion template is meant to help organize all your medical information to help make navigating the medical system easier! It contains t

i know hearing people on this website love to pass around those posts with links to free sign language lessons but you know you need to actually put effort into learning about Deaf culture, too, right?

My face is having uncontrollable spasms. Great. It hurts really, really, really bad.

I think part of why I have trouble explaining pain to the doctor is when they ask about the pain scale I always think “Well, if someone threw me down a flight of stairs right now or punched me a few times, it would definitely hurt a lot more” so I end up saying a low number. I was reading an article that said that “10” is the most commonly reported number and that is baffling to me. When I woke up from surgery with an 8" incision in my body and I could hardly even speak, I was in the most horrific pain of my life but I said “6” because I thought “Well, if you hit me in the stomach, it would be worse.”

I'm so extremely serious when I say doctors should be put through an extremely extensive reliscensing process every 10 years. Doctors should have their knowledge scrutinized against current medical research and be de-barred at even the tiniest discrepancy. Too many old doctors absolutely refuse to stay up to date on research and dismiss patients because of their personal experiences. Too many people die every year because doctors don't take us seriously and refuse to listen to people who KNOW something is wrong. Too many people are told their problems are nothing and come back in a year or more with serious illnesses and doctors are just like "lol everyone makes mistakes" but doctors mistakes routinely cost people their lives! I'm tired of medical malpractice being swept away under the guise of "mistakes were made."

PSA as we go into spooky season and people start using activated charcoal to make foods look spooky.

Before you pay that not-covered hospital bill:

I want to take a min to spread awareness for the No Surprises Act after noticing a reddit post earlier.

This protection for patients just popped up in the past couple years, and the one major downside is that it's up to the patients to speak up to make use of it, but not everyone knows what it is.

"If you have private health insurance, these new protections ban the most common types of surprise bills. If you’re uninsured or you decide not to use your health insurance for a service, under these protections, you can often get a good faith estimate of the cost of your care up front, before your visit."

Consumer fact sheet

Typically, health insurance companies will help pay for bills from "in-network" providers, AKA their VIP inner circle gang turf. They won't help pay if you get medical care from another gang's henchmen (out of network).

This means that sometimes, a person would go to the hospital, which they knew had been covered by their insurance before, so they expect it's going to be relatively affordable. But they didn't know that multiple medical "gangs" were working in the same hospital. Their anesthesiologist, for example, was from a different gang. That specialist was out of network even though the surgeon and nurses were all in network.

Boom. Big bill for thousands of dollars and their insurance refuses to help pay it.

But now we have this law! The No Surprises Act means that insurance companies need to cover "surprise" expenses (under certain conditions).

If you don't have health insurance, hospitals and clinics need to give you an accurate quote before you get services, then foot the bill if they were too far off the mark.

The Fact Sheet section of the Centers for Medicare and Medicaid services have some wonderful user-friendly resources for you about health insurance and how this act works.

Keep in mind that Medicare and government-run programs always have weird rules for everything, so you might have different (yet similar) protections through those programs.

If you have a medical bill that wasn't covered by insurance and you think it might count as a surprise bill, please check out your rights and consider fighting it instead of letting it become a stressful expense or debt you can't repay.

Go here to start figuring things out for your situation:

Health insurance companies have way, waaaaay too much power over our lives. We need every drop of protection we can get - but it only counts as much as we can understand and use those protections!

join a community for all the girlies with gi issues.

warning: please be patient as i continue to work on it.

Ah yes, my favorite chronic illness game: is this normal, is this new, or am I dying?