I very much relate to this. it is frustrating to me that the parts of dissociative disorders that people almost exclusively focus on are, well, the parts. but much of the time that isn't actually the primary way my life is affected. it doesn't always actually matter WHO I am right now, but the side effects of living a fragmented life are difficult to manage.
i feel like we don’t always talk about the smaller ways that having a dissociative disorder (and not being “out” about it) can really disable a person— i’m in a choir, and idk how to explain to the musical director that SOMETIMES i am a soprano and have no trouble hitting high notes while other times i feel like i physically cannot sing that high. or how sometimes my guitar feels like an extension of my body but sometimes i don’t even remember how i’m supposed to hold it properly. or in art therapy when i only sometimes have access to my adult level of artistic skill while sometimes i have the skill level of a five year old. my dissociative disorder very much disables me, and this is something i don’t see people talking about outside of the ways that PTSD disables those with dissociative disorders. what i mean is that sometimes i do not have the ability to do very basic tasks. dissociative disorders are developmental disorders, and i am very much developmentally disabled much of the time.
i don’t plan on ever being publicly out about my dissociative disorder in a non anonymous setting. i have a hard time even talking about my parts in therapy even to the clinician that diagnosed me with DID. it feels unbearably vulnerable and not safe to tell people about my parts. i feel like we’re seeing more and more people on tik tok start talking publicly about their DID, and while that may be very helpful for them, i honestly can’t imagine ever being fully out with it like that. keeping it secret is what has kept me safe, it is how i survived the last twenty years of my life. my experience with DID also does not line up with most of the DID content i’ve seen online— and i don’t mean this to invalidate those whose experiences are different than mine, it’s just that it can feel really lonely and isolating to have a dissociative disorder that doesn’t fit with the worlds preconceived image of what a dissociative disorder looks like. this is part of why i typically just say that i have dissociative disorder instead of DID.
tldr: dissociative disorders can really impair basic functioning and i feel like people forget that when they focus so much on the parts of DID that are more sensationalized in the media.
just because a person cannot speak
doesnt mean they dont understand or have nothing to say
suffering exists in our resistance to change. our attachment to impermanence. our desire to hold onto what has already been let go of.
(Please endure the shitty editing, I have no idea what I'm doing)
Thanks to Rachel Ott whose greenhouse I found on Pinterest and used as an inspiration. She has her own templates on her DIY blog "Entertain the Idea".
The Zelda specific templates I made myself.
CONNIE PANZARINO at a pride march in Boston circa 1990
[ID: Connie is marching along in her sip 'n' puff (SNP) wheelchair. She is wearing a patterned poncho and sporting a green felt party crown on her head. She styles a pair of wire-rimmed glasses with her slicked back hair. She is smiling. Attached to the back of her wheelchair is a large green cardboard poster that reads "Trached Dykes Eat Pussy Without Comin' Up For Air!" followed by a pink upside-down triangle with a stick figure person in a wheelchair at the centre (a symbol for disabled women)].
the cyborg & the crip by Alison Kafer
[ID: “Trached dykes eat pussy without coming up for air.” Connie Panzarino, a longtime disability activist and out lesbian, would attach this sign to her wheelchair during Pride marches in Boston in the early 1990s. Shockingly explicit, her sign refuses to cast technology as cold, distancing, or disembodied/disembodying, presenting it instead as a source and site of embodied pleasure. “Trach” is an abbreviation of tracheotomy, a medical procedure in which a breathing tube is inserted directly into the trachea, bypassing the mouth and nose. Someone with a trach, then, can, in effect, breathe through her throat, freeing her mouth for other activities (another version of this sign is “Trached dykes french kiss without coming up for air”). From a cyborgian perspective, this sign is brilliantly provocative and productive. It draws on the pervasive idea that adaptive technologies grant superior abilities,not merely replacing a lost capacity but enhancing it, yet it does so in a highly subversive way. The message here isn’t about blending in, about passing as normal or hypernormal, but about publicly announcing the viability of a queer disabled location. It’s disnormalizing, adamantly refusing compulsory heterosexuality, compulsory able bodiedness, and homonormativity. As Corbett O’Toole argues, it challenges the perceived passivity of disabled women, presenting them as actively pleasuring their partners, thereby graphically refuting stereotypes linking physical disability with nonsexuality.]
For 2 days in a row I have seen this little guy removing leaves from my plant and eating them until he passes out. He's missing an ear, so he may be self-medicating his PTSD, but still, I think it's time for an intervention.
I'll let him sleep this time, but when he wakes up, we'll have a serious talk.