I Hope You Continue This Character Story.

CSSB - Update (9/17)

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@piratesbooty63fan replied to your post: If you see me on here posting, and liking…

Back away from tumblr you are too close to tumblr! GET BACK TO PACKING!!!! LOL :D

On May 28th, my sister, Edna, turned 31.

 Her mental age is about three years old. She loves Winnie the Pooh, Beauty & the Beast, and Sesame Street. Even though the below picture is unconvincing. 

Edna and “Cookie.” I think she was trying to play it cool. 

My name is Jeanie. I’m Edna’s younger sister. I’m also her guardian and caregiver. 

That’s me on the left. (Hey, you never know. After a year of writing a blog about online dating - Jeanie Does the Internet - I’ve come to learn that there are A LOT of fools on the internet.) 

ANYWAY, I’m not “doing the internet” anymore. I’m taking care of Edna full-time, after completing my MFA in Writing for Screen & Television at USC.

May 16, 2014. I wanted a picture. Edna wanted breakfast.

In case you’re wondering where our parents are, they’re dead. Our mom died of breast cancer when she was just 33. 

Us with mom before she died. (Obviously.)

As for our dad, he peaced-out around the time my mom got sick. His loss - we’re awesome. 

Here we are being awesome at the beach. Pushing a wheelchair in the sand? Not so awesome. 

In case you’re wondering “What’s wrong?” with my sister - as a stranger once asked me on the street  -  NOTHING. Yes, Edna has a rare form of epilepsy - Lennox-Gastaut syndrome - but I don’t know if that’s anymore “wrong” than people who don’t have manners. 

Basically, Edna was born “normal,” and started having seizures as a baby. They eventually got so bad that they cut off the oxygen to her brain, causing her to be mentally disabled. Or impaired. Or intellectually disabled. Or whatever you want to call it - except “retarded,” because in 2010, President Obama signed Rosa’s Law into effect, replacing that word with “intellectually impaired.” 

Which is cool and all, but services for the disabled and the people who care for them are SEVERELY LACKING. Also, there’s a bunch of people working in taxpayer-funded positions who are supposed to help families like us, but don’t. (Big surprise, I know.) They just fill out paperwork (whenever they feel like it) with asinine statements like this: 

YUP. I transport my sister down the stairs in her wheelchair, because that is not only safe, but TOTALLY PRACTICAL. Why doesn’t everyone in a wheelchair just take the stairs, for God’s sake? Stop being so lazy, PEOPLE WITHOUT WORKING LEGS! 

But, as it says above, Edna’s legs do work. Whether or not she wants them to, is another story. 

Edna refusing to go inside. 

These are the stairs that I have to carry her up - by myself - on a daily basis. That is, until one of my legs break and both of us are just sitting at the bottom of the stairs, helpless. 

For six months, I have begged - BEGGED - the State of California to help my sister, which they are required by law - The Lanterman Act specifically - to do so. But they’ve told me “these things take time” and that I “need to amend my expectations.” (That was said to me when I refused to place Edna at AN ALL-MALE CARE FACILITY. Because yes, that was an “option” that was offered to me.) 

Prior to Edna moving in with me in my one-bedroom apartment, she was living with her amazing caregiver, Gaby, back in Tucson, where we went to high school and I did my undergrad. Edna’s reppin’ the Wildcats below. 

But back in November, Gaby also died from breast cancer. (FUCK YOU, BREAST CANCER!) This picture was taken a month before she died. She never even told me she was sick because she didn’t want me to worry. 

By the way, we were raised by our grandma. Edna and her were very close.

She’s dead, too. Surprise.

She died when I was 20 and Edna was 21. That’s when I became Edna’s legal guardian and Gaby stepped into the picture to help me out with Edna. 

So, six months ago, after Gaby died, I moved Edna to California, where I tried to get the folks over at The Frank D. Lanterman Regional Center to help me. I’ve told them I’m worried about our safety - that one of us could get hurt on the stairs -  I’ve told them I can’t afford to pay the private babysitters $15/hour because the ones social services sent me who make $9/hour were unreliable (they didn’t show up on time or at all so I could get to school and work), untrustworthy (one of them let Edna go to the bathroom in the kitchen and then took her into the bathroom because “that what I thought I was supposed to do.”) 

But the people over at the FLRC don’t return my calls, they don’t file the paperwork on time - and the first caseworker that was assigned to us actually LAUGHED AT my sister when he came to our home to evaluate her. When I reported him to his supervisor, she told me, “That’s just [insert name of said jackass].” 

He was one of the two caseworkers that contributed to the report I mentioned above, which also included this: 

So let me get this straight - I have to feed, bathe, dress and help Edna in the bathroom and you can’t deduce whether or not she is able to vote? What in the fuck?!

Now I realize I seem angry. And you can bet your balls I am. I’m also sad. Sad for those who don’t have family to stick up from them and who waste away God knows where, monitored by no one. Or monitored by people who physically and sexually assault them. 

I’m also sad for the caregivers who are SO EXHAUSTED - trying to take care of their loved ones - while also trying to take care of themselves and battling a system that is supposed to help, but does nothing of the sort. And I know a lot of people give up. They let their dreams, their marriages, their friendships slide. All while trying not to resent the very person you’re doing it all for.

Edna wanted to sit next to me the other day while I was writing. Clearly, she’s not impressed. 

Here’s the thing: I REFUSE TO GIVE UP. I’M NOT GIVING UP ON HER OR MYSELF. I’m going to pursue my dreams while taking care of her, AND while ensuring that the people paid to do their jobs ACTUALLY do them.

That’s where you come in. I need you to help me get my story out there. Because I know I’m not alone in this. I want to connect with families who are in similar situations and also show people who have no idea what it’s like to care for someone with a disability (or even a loved one who is sick) that it can be rewarding. Super fucking hard. Exhausting. Painful. Isolating. But, rewarding. 

I’m going to get help for my sister - and others. My hope is that by sharing our story, I can bring awareness to the lack of services and help for the disabled. 

Thank you, 

Jeanie 

Facebook:  facebook.com/eisforedna

Twitter: @EisforEdna 

The Once Upon a Captain Swan Storybook, Vol 2 

Join 57 authors and 22 illustrators as they collaborated to bring you Emma and Killian’s story from start to finish. Inside you will find 62 stories—deleted scenes and canon divergences, rating from G all the way up to M—covering all the most important Captain Swan moments through the years.  In addition, there are 9 vendors who have special Captain Swan Merchandise just for you.  With 506 pages and over 176,000 words, there is something for everyone.  

Sit back and enjoy and be sure to let the authors and artists know your thoughts. 

  click —-  CSSB, Vol 2

Please reblog so that everyone has an opportunity to see this. 

We would like to thank those who participated.  

@allofthismatters  @allyourdarlingswans    @ashar663   @bethacaciakay            @beholdtherollyjogger  @blackwidownat2814   @blessed-but-distressed  @captain-swan-coffee     @captainswanluver    @captndevil                 @charmingturkeysandwich  @cocohook38       @delightfully-difficult-pirate   @demisexualemmaswan          @donteattheappleshook     @duathadun     @eala-captian   @elaine–captain–swan      @eastwesthomeisbest     @euphoric-melancholyy    @flipperbrain  @flslp87   @forestiyari                     @gingerchangeling   @gottagetmeoneofthese @gusenitsaa    @hellomommanerd   @hollyethecurious    @hookedonapirate      @hopeandbeans       @hungrywhovianpotterheadfrom221b      @ilovemesomekillianjones    @imharryaf  @initiala    @jackkellyssweetheart   @jell-obeans        @jemmingart     @jennifer-morrison    @just-be-magnificent   @juliakaze   @katealexandra26    @kmomof4@kmomof4  @krustybunny     @ladyciaramiggles   @laschatzi   @legendofthephoenixcs  @lifeincolorblog        @liloproductions    @lostgirlfoundhome   @madjm     @marcella2727      @mediumsizedfountain   @nicole-nikla   @not-talking-about-pancakes     @ohmakemeahercules    @once-uponacaptain   @pirateherokillian   @revanmeetra87    @rouhn           @sailingcaptainswan     @sambethe      @seriouslyhooked    @singingisfun  @snowbellewells     @somethingalltogether  @stophookingatmeswan   @superchocovian    @tennant-the-tigger    @the-captains-ayebrows   @thejacketandthehook  @theonceoverthinker     @the-reason-to-sail-home    @the-savior-and-the-pirate  @winterbaby89      @whimsicallyenchantedrose    @xhookswenchx

are we gonna see a sneak peek of the next chapter posted soon? hopefully with Mike and Sasha! :) I hope your auntie is doing better!

Sasha Hardy had been visiting Joe Carroll in prison for years, determined to get the information she needed from him. But now, she’d been drawn into the investigation and the search for Joe’s followers

It had been Joe’s plan all along, all part of his game.

And Sasha had just become one of the main players. Mike x OC ***SEASON ONE WITH ADDED CHARACTER***

A man stopped by the Applebees that fired that waitress for posting the receipt from a pastor who didn’t want to give her a tip. This was the letter he left. It reads: 

Dear Applebee’s:

Let me cut to the chase: I find your termination of Ms. Chelsea Welch (an otherwise excellent and hard working employee) downright deplorable and appalling. As far as I’m concerned, she did absolutely NOTHING “wrong” when posting the image of that receipt with that insulting comment made by the customer Pastor Alois Bell.

First off, there was absolutely nothing mentioned in the employee handbook admonishing this kind of behavior, but more importantly (if you wish to argue otherwise) just how much “personal information” could have possibly been divulged to the public just by the customer’s signature? NOWHERE was the customer’s full name, credit card information, address or even YOUR restaurant’s name indicated on the photograph of that receipt which is far more incriminating and potentially damaging information than just a signature alone.

How is a mere signature going to help a criminal commit an act of identity theft? Local health inspectors and fire/safety inspectors have their signatures prominently displayed on certificates posted publicly by restaurants like yours… can THEY complain that you publicly displayed their “private information”?

As far as I’m concerned the only “damage” done was to the pastor’s shallow and “precious” ego. Nothing more, nothing less. She could’ve have simply ignored the post, not said anything and just went on with her cheap and inconsiderate, stingy ways. No one would’ve been the wiser. But no. She HAD to complain to the manager and have an otherwise fantastic employee fired simply because she was embarrassed.

Ms. Welch did absolutely NOTHING to publicly embarrass/humiliate her…. MS. BELL DID. And cared more about her ego than actually righting a wrong and offering to not only fairly tip what was rightfully due to Ms. Welch, but fight to get her re-hired. Ms. Alois Bell, the pathetic excuse of a human being she is, did absolutely NONE of that… and YOUR company has the NERVE to stand by her side???

As a part time pizza delivery driver myself, I KNOW first hand what its like to work for a less than minimum wage depending almost entirely on tips just to pay basic necessities such as food and rent. Yeah, I get the “average” principle and try not to take the occasional stuff so seriously, however, on some really bad days when I have runs that I have to drive far, using MY personal vehicle and MY personal gas, and get nothing, its not only very frustrating but completely unfair that I get taxed at federal minimum wage rate when [I’m] actually making LESS in that hour delivering to these inconsiderate customers who have no clue as to what SERVICE is all about. Essentially getting taxed on money that I’m NOT making. And THIS is what your company CONDONES and is PROUD OF?!?!?!

Long story short: I have come to your Easy Brunswick/Milltown restaurant NOT to order anything…but to simply use the restroom, get my complimentary water with lemon and just LEAVE but not without generously tipping your server for doing nothing more than bringing me menus and water.

Furthermore I promised the server that should this letter appear online and go viral, that I’ll be returning to the store and DOUBLING his/her tip. And since he/she has my full permission and consent to post this letter online with MY NAME and signature fully visible, there isn’t ANYTHING that you can do about it.

Yours very sincerely and respectfully,

A now FORMER customer of yours,

Michael T. Zybura (attached $10)

(source)

Will we finally see a new chapter for Eyes Open? I sure hope so! Am super intrigued to find out what happens after seeing all of the pic-snaps and AUs posted.

Nicole getting more sneak peeks at Eyes Open 😂

That would be amazing! :D

no but really when the fuck are jimmy fallon and justin timberlake going to host the oscars

I totally agree! :D

100% “It’s Emma in the hood” Squad

Reblog if you agree.

HAVE YOU RECIEVED THIS EMAIL??

I nearly fell for this because it looks so realistic. I had a bad feeling as I was typing in my information and went to Netflix to see of there was an issue.

Everything was fine, but now I need to change my password since I logged in with it.

This is 100% a scam and the email was sent from iflex-invoice@spectrum.net , and not an @netflix email.

Please boost this to get the word out and to keep your info safe!