I Think That “people With Limited Mobility Or Ability To Leave Their Homes Deserve The Same Access

i just wanna say, as a feeding tube haver, that it's so much more possible to get used to invasive medical devices than you might fear.

i grew up horrified by even being reminded organs exist. i was just so severely grossed out by human anatomy. i got a lot better about it through years of chronic illness, since you just have to get used to it. but that's the baseline i started from originally, in case you are also squeamish and wonder if it's possible for that to change.

so when i needed a feeding tube, i was pretty distressed by the idea. having a tube sticking through a new hole in my abdomen was a seriously horrifying concept, and i couldn't imagine coping with having a stoma (the hole) and caring for it etc. i did it because i needed it to survive but thought i might never get used to it.

and yeah, it freaked me out at first. but eventually i did just get used to it. it just feels normal now. i even feel affection towards it, because it is keeping me alive.

I was thinking maybe I'd do a couple audio clips of me talking to kind of demonstrate what some speech disabilities can sound like, one of me just talking and one reciting a few scripted lines from work.

Man, I’m going to have to put something like ‘lifters don’t interact’ on klepto things going forward, aren’t I? Like it really sucks, but they make actual!kleptos look shittier than we already are and I don’t want people to think the two are the same thing.

To my knowledge, my hair started turning grey when I was ten. But, from what I remember, I was super surprised to find a grey strand so it might have started sooner than that. My hair has also steadily been getting greyer since then.

*mom voice* You can get these words back when you know what they mean

Yeah, Cass is a completely different issue. Young Justice seems to have a racism issue (and a quarter billion other issues,) and how they changed Cassandra's storyline is a good example of that. Excellent points

(Cass will also get her own post, by the way)

I love the Young Justice Barbara Gordon

[Plain text: I love the Young Justice Barbara Gordon.]

(Keep in mind that I am not paraplegic, just a nerd)

I was never the biggest fan of the original Killing Joke storyline (and I will fight people on this,) but I think Young Justice managed to turn it into a plot that wasn't actually bad. In fact, they did a lot of things really well.

The original storyline, The Killing Joke, gave Barbara Gordon waist-down paralysis after the Joker shot her. The problem with that is that he shot her in the stomach at an extremely close range, the muzzle of the gun literally pressed to the middle of her stomach. At that close a range, depending on the gun and bullet, he probably shattered half of her spinal cord, if not more. The thing about shatter injuries to the spinal cord is that they cause more complications in upper-body mobility than other spinal injuries. If a significant portion of her spinal cord was shattered, Barbara wouldn't be as good as she is at fighting. The damage would cause problems in the rest of her body. And then, of course, everyone is grieving for her and so sad that she'll never walk again and have to retire and I'm pretty sure Batman does something drastic? And that's... really not a plot non-disabled writers should go for.

However, in Young Justice, it's completely different. Barbara saw Cassandra Cain, who was unidentifiable but very small so obviously a young child, going after Joker with a sword, so she chose to get between the child and her target to prevent Cass from doing something that could never be taken back. She took the slash, which hit her lower back, just above her tailbone, so that it didn't go to Joker's neck. And the other characters handled it well. Nightwing was a bit panicked, of course, but that's because Barabara had a severe injury that was life-threatening. Batman, knowing that Nightwing had called for a medical evacuation and that he was handling first aid, took the sword from a terrified Cassandra ever so gently, and put a comforting hand on her shoulder. Cassandra was horrified, of course, but it was because she'd just hurt someone who wasn't her target severely, not because Barbara was now disabled. And then Barbara tells her that she didn't do it to save Joker, she did it to save Cass. And Cass is horrified and probably hates herself in the moment, sure, but that memory later becomes something that strengthens her. Cass gets kidnapped in that episode and remembering that during her captivity helps her. It's a memory of the woman who would later become her older sister and one of her best friends. She knows that Barbara, the woman who has done so much for her, will help her. She won't rest until Cassandra is safe, even if it means coming after her herself.

I also really like how the plot handled this. Number one, we don't know off the bat why Barb is paralyzed, it doesn't come up until it's relevant, she's just paralyzed. And when it does come up, it's not a tragedy, it's Barbara risking her life to save the soul of a child who didn't understand the moral consequences of what she was about to do. She chose to do that and she would do it again. That's a really interesting way of subverting the exhausted "disabled by an accident" trope, because yes, it was an accident on Cass's part, but Barbara knew she was probably going to get badly hurt. It's similar to a character running into a burning building to save someone else. They accept the potential consequences because they couldn't live with themselves if they didn't help. She took the risk, she knew what could happen, which is so much better than her having no choice and being shot. It's far less tired an idea and a very interesting spin that I quite like.

Going back to the injury, let's get in-depth about that. I mentioned how a shatter would impact her upper body, too. But the way she was injured in Young Justice, which was probably severing the connection between two very low vertebrae or possibly cutting a vertebra itself if Cass put enough force behind it, makes sense. It wouldn't have as much a major impact on her upper body, so it makes sense that she can throw the person who snuck up on her like it's easy. Barbara can be an excellent hand-to-hand fighter and it's not unexplainable. We don't see her exercising in her chair, likely because she has the wrong chair for both exercising and her disability (she has a hospital-type wheelchair instead of a lightweight chair, which is, I think, just poor research,) but she clearly still does because she's still extremely good.

Also, I like how there's no cure plot. The show might still be ongoing so I don't know if that'll last, but for now, she hasn't been cured and shows no desire to be. The comics would occasionally have her paralysis cured and thank the gods they didn't go with that, even with a character (we won't get into the absolute disaster of Violet Harper here) who could, in theory, heal her, and I love that. For some reason writers are afraid of keeping their disabled characters disabled, so I'm surprised and glad they didn't take the easy out.

Finally, I love that Oracle is still able to do field work with special equipment. Does she go onto the actual field herself? No, not really. But she uses small drones and other things to help out, such as the tiny drone that gave Cass a lock pick or her hacking into systems to protect her allies from security measures. Babs doesn't need to stop being a superhero because she's disabled but also doesn't suddenly use a mech or something, she just finds ways to work with her new circumstances to keep doing what she wants to do, just in a different way. She's still a massive threat to her enemies, just in a different way, utilizing talents she already had (Barbara is extremely intelligent and very creative) to continue to help people.

TL;DR, I really, really like how Young Justice handled Barbara Gordon. If we must have more characters disabled in accidents, this is a very good way to do that.

on tumblr lot more people know about it which great! that improve life of all AAC users. but pretty much with anything disability/developmental disability space on social media (which need certain amount of cognitive/intellectual & language abilities be on even if have support), good majority you see be teen & adult people who already literate learn language via speech n write *first* n then *independently* learn AAC base on it *later*.

especially symbol based AAC, but all AAC, is new system n hard n take long time learn even when you literate & not moderately severely cognitively disabled. but also, “literate teen/adult independent learn AAC” not at all full face of AAC user community.

as in like. experience of theirs. not universal. independently motivated & able to look up different AAC options different AAC apps, compare n contrast. download app n immediately know how to use, or able figure out by self. first time use app n may be clunky n slow, but make sentence on first try. need learn AAC, but most of that learning is for where words are (if button based), how exist as AAC user in public with confidence, etc. those all valid but not true for everyone who need AAC, especially not developmentally disabled children (& some adults) with complex communication needs.

most developmentally disabled children (n some adults) w complex communication needs who need AAC, can’t just hand them tablet with symbol based AAC app or text to speech AAC app n then wait for magic. many of them developmentally delayed in way, not taught in way that fit them (e.g. gestalt language processors), n their language abilities behind peers, so they can’t read, can’t spell, can’t grammar, etc.

some of them need learn where word is not by read word, sometimes not even by understand symbol, by other people press button n hear sound n associate that with meaning n location on AAC n symbol associate with it. in other words, they learning language alongside AAC.

for some their learn process look like, learn how use AAC say one word. n then much later, try make two word message, “want food” “go school.” “two word message” incredibly common goal for many these developmentally disabled children, teens, n even adults, that is something rare n truly extraordinary for that person that need be celebrated.

for others it look like learn by phrase (gestalt), then slowly break it down into smaller phrase n chunks n finally single words.

many of them babble (click random/seemingly random buttons on high tech device, stim with it, etc). but ultimately, won’t be able learn all by self. need be taught, see you accidentally spill water n crying, maybe you “feel” “sad”, n when that happen you “need” “help” from adult. need learn AAC by adults around them constantly model with it, constantly use it in conversation, show them how use. because they learning language along side it.

but also some of them don’t know what this thing in front of them (AAC… device, low tech boards or picture cards, etc) is. don’t know what communication is or you should do that. don’t know people exist who you should communicate to & with. heard many parents n SLP say they try model all time, try all kind of stuff, but child just not seem interested in it, don’t look at it, don’t touch it, don’t use it.

people who use AAC, not all them struggle with only speech. some them struggle with language, with intellectual/cognitive. some of them very developmentally delayed.

n some people, too disabled learn or use AAC. yeah, they exist.

for people who cannot use / cannot only use speech to be understood, AAC can be life changing. but is so much more complex thing. AAC still not as widely used n accepted n properly taught n supported as should, some parents n professionals n schools still many pushback n refuse. but sometimes answer to “have you tried AAC for them” is “yes, but they need long time n lots help to learn n we not very far yet even though spent long time on it” or “yes, but they simply not show interest even after constant model” or “god, wish can, but insurance only cover if show some amount of communication competence n ability use AAC, while only give 1 month trial, which simply not enough time” (wide spread thing that happen) or “yes. many types. it not work.”

for many AAC users & AAC user-to-be, it not as simple as “be handed AAC n check back in while they figure out by self”

“Don’t let your disorder define you”

Okay but do you support the people whose disorders do define them?

Do you support people with the chronic illnesses who have had to develop whole lives around their conditions? Do you support the intellectually disabled people whose whole way of thinking is defined by their disorder? Do you support the people with personality disorders who literally have a disorder as a personality? Do you support the autism/ADHD people whose disorder you can’t separate from who they are? Do you support the DIDOSDD people who have multiple definitions of themselves because of their disorder?

Or are you just saying that because a disorder defining someone means you can’t ignore it.

not be able communicate by words means… constantly be misunderstood. misinterpreted. not have any way show own perspective, your side of story. your story always written talked about interpreted read thru other people.

someone did something wrong you. someone hurt you. someone say wrong thing…

someone make up malicious thing about you. maybe that you rude ungrateful bad temper behavior problem. it now become truth it now become you because there no way you correct them.

you can’t educate them. you can’t explain it to them. nevermind that, for example, you severely disabled n having symptoms that impact quality of life, or have symptoms that dare inconvenience people - can only watch as people around you speak “for” you not with your interest in mind but of their own selfishness - that people who can communicate by word say you only do that because you lazy, you selfish, want attention, on purpose, just want to for no reason, faking, inherent personality flaw.

not just big things. more often it those small things that build up every day, happen tens n hundreds of times each day, every day, every week, every month, every year… more often it those small things that add up that break you.

imagine everything bad, incorrect, & bad and incorrect thing said about you in your life. n now imagine you not able defend yourself, explain yourself, or even say those wrong not true.

n any attempt of yours to maybe protest, not enough, people not understand, or downright not listened to, made fun of. at first you shake head make noise meaning no all calm. after while of it not work you get frustrate n it start showing. you get impatient n snappy, why none of you understand, is any of you even trying. but people around you with privilege of able communicate n defend self thus never have experience of not have that, find it such basic of skill that they no longer see it as acquired skill but instead see as innate, born in, natural, cannot imagine person not have it just like can’t imagine living person not breathing—they only see their perspective n only see their interaction n not the many, hundreds n thousands, of previous communication where no one understood you (or even tried to). so they mock you (sometimes they the one who on purpose provoke you to see your reaction like you monkey in cage for their entertainment), geez big reaction why can’t you be patient. n you get label, impatient, rude, explosive, anger issues.

you protest in only way you can without words. you do it by sounds n noises n movement. you raise voice you scream you smash thing around you you hit yourself in frustration you hit other people who don’t understand you because you frustrated at their incompetence n how much they failing you. because. show me another way person can communicate without words. show me way that one can continue do after tens n thousands of misinterpretations n miscommunications n malicious interactions.

you communicate in only way you can with only emotion you can feel at this point: anger, frustration, helpless. be misunderstood, even smallest innocent one become trauma become trigger. miscommunication alone can set it off, make you see red n see billion of previous miscommunication where everyone failed you n left you to fend for self. then the backhanded jab that sometimes follow, that make thing exponentially worse.

you communicate in only way you can with only emotion left you can feel that consume you. loud sounds, screaming, get physical. it not earn you be understood. it only earn you this: be called impatient, irrational, explosive, land mine, rude, ungrateful, annoying…

“behavior issues.”

and that’s another misinterpretation of you you can’t defend yourself against. cycle repeats.

n other verbal people only listen to other verbal people. so these descriptions of you become “your truths”.

n the true you left there. to rot.

a lot people with no functional communication (either because no ability, or because circumstances) labeled as have behavior issues. yeah, no fucking shit. try it for a while. anyone would “have behavioral issues” in these circumstances.

no one seem to care. so okay fuck yeah am difficult kid, have behavioral issues, make your life miserable. yeah am terrible person, have internet personality flaw of no fault but my own. except now do it on purpose, make it true now, put ability to control own truth in own hand. because you all seem want me be that so bad. so now you get it. don’t complain now, you all asked for it really really nicely.

but deep down. at most basic. hidden beneath. really just. want be understood. want be helped. want people to learn my communication.

“many behavior is communication” yes, those kind of behaviors should be respected n valued n listened, but try behavior your way out of correcting n explaining everything just said in post to person who just don’t seem to get it

without rely on good grace of nice people around you who keep on play guess games n give out guesses in words you can nod or shake head to. now, that’s cheating.

people not nice to people who *have no choice* but to *only* rely on behaviors & vocal noises to communicate

n, even if every single person nice. behaviors n vocal noises alone, not enough.

this written with full time experience in mind

Where are all the "slow" kids, the challenged kids, the burnouts from birth, the burden to have in class? Where are the autists who can't mask, who self harm, who are loud and can't stop stimming? The NDs with processing disorders, brain damage, brain fog? The ones with down syndrome, FAS, and other conditions that people treat like curses or defects. I hardly ever see them past 18 and I know they don't just dissolve once they become adults.