I see you disabled people who don't know your family medical history because your family members couldn't/wouldn't/weren't allowed to go to the doctor and never got diagnosed, or don't know your family.
I see you disabled people who didn't know you were disabled growing up, physically or mentally, maybe because your parents didn't have insurance and couldn't afford it/wouldn't take you seriously/didn't think it was a problem because they had it/doctors couldn't figure it out.
I see you disabled people who have bouts of an issue that you grew up with, that are/were infrequent enough that you never really thought about it and dealt with it on your own, and when you have one in front of people who weren't medically neglected, you wonder why they look so horrified as you describe it.
I see you disabled people who didn't/haven't had any amount of care or accommodation for their disability since it started, because you couldn't get diagnosed.
I see you disabled people who grew up thinking everyone had the same problem as you and that it was normal and so you accepted it, because you didn't understand how the human body worked and had no real frame of reference nor the language to ask for help, or the people around you saw it and just ignored it.
I see you disabled people only now understanding that what you experience is abnormal, and that there are things that can be done to help it, make it easier, or at least help you understand yourself better.
I see you disabled people that will never be able to get diagnosed or get the help you need, whether from being poor, lacking insurance, or any number of reasons.
This shit is hard, and there are people who will never quite understand your struggles. It doesn't seem to get talked about as much, but I wish it was. Please know I love you, and you aren't alone.
Hi. This isn’t about writing necessarily, but i still want to see what you think of it. :( I just recently gave somebody a free character design as part of an event and the character i’d made was using mobility aids (a cane and a prosthetic leg). I noticed later the owner saying the character wouldn’t need a prosthetic or cane because they’d decided already that the character would have disability negating magic. I am able-bodied. I don’t know this person closely. Is it wrong of me to feel bad? Should i speak up even if it’s not my business and they can do whatever they want with the design?
Hello,
No, it's not wrong of you to feel bad or be upset, that's a shabby thing to do and I would be upset. Maybe direct message them about the change and try to talk it out with them, explain how you feel, maybe explain why magic that negates disability is a bad thing? Don't accuse them, just ask them and talk to them.
But no, you aren't wrong in not liking the change, you are very much justified in that.
Mod Aaron
When I was a kid I kept failing classes because I'd lose my homework. I'd finish it, but between the dining room table and the classroom it would just walk away. Sometimes it ended up in my backpack, sometimes it didn't; sometimes I finished the homework at school and it got home in my backpack but wasn't there the next day.
To attempt to address this, my parents got me a neon orange folder to put in my backpack; it was my homework folder, all homework was to go into that folder and that folder only, and it was to only come out of that folder when it was being worked on. I was to put homework in the homework folder as soon as it was assigned and if I'd worked on it, put it back in the folder as soon as it was finished. The logic here was that using the folder was supposed to be automatic, and you wanted a bright color so it wouldn't get lost in the depths of a backpack.
I think I lost about eight of those before my parents stopped buying orange folders.
So it was very frustrating to search "how to be organized at work as an adult with ADHD" only to get a list that said "set alarms and write things down and try to make friends with a more organized person" which was immediately followed by tips to help your ADHD child stay organized and the one right at the top was to put their homework in a bright folder so they couldn't lose it.
If you have been harmed by the ADHD Tips Industrial Complex you may be entitled to a packet of fun-dip and a cactus cooler as consolation for losing your homework folder again.
nonverbal / nonspeaking ppl, what you sound like inside head (internal voice)? like when talk to self inside head
[nonverbal nonspeaking as in full time experience not episode or “go __”]
try include as much option as can think of but am sure missed some… feel free tell me / elaborate in comments / reblog / tags >:)
I wish there was a law against strobe bike lights. Last night i literally had a seizure because my boyfriends roommate got home when I was outside, and suddenly the yard was strobing.
Like okaay, TV rules were changed cuz of that one episode of pokemon that gave kids seizures right? So how come its chill that people can ride around through town with strobe lights attached to their bikes? What if a kid is in a car behind you and has a seizure? What if someone is walking down the street and suddenly your bile is the reason they are in the back of an ambulance?
As someone with photosensitive epilepsy, I've been taught my whole life to avoid the flashing triggers. When things are flashy online youre told to just avoid the internet, when stores have bad lights dont shop there, no clubbing or parties because there will be strobes. It feels so unfair that even when we go out of our way to avoid seizure triggers, people still will find a way to make your world smaller and smaller.
Even on a not epilepsy note, they are literally more unsafe for bikers because the strobing light makes it harder for night drivers to tell how fast and where exactly you are than a non blinking light......
Most people really don't seem to know what this mysterious "residential care" means when it comes to disabilities.
"This person is severely disabled, they have to live in residential care."
Do you know what happens when a severely disabled person with high support needs who isn't aware of dangers and needs constant supervision applies for residential care?
They get turned down or kicked out a couple of days later.
This happens regularly, btw. Kids grow up and parents think "Oh, residential care sounds good", and then suddenly every institution, etc. goes "Sorry, we don't specialise in that, sorry, your child is too aggressive, sorry, your child can't stick to our sleep schedule, sorry, your child is too noise sensitive, sorry, your child HAS to participate in our weekly activities even though their disability makes it impossible for them to do so, sorry..."
People who can live in residential care aren't your "the worst of the worst" example. There is such a thing as "too disabled for residential care" and it's more common than you'd think! ☝🏼
"But what happens when someone is too disabled for residential care and their family can't take care of them? Surely everyone eventually ends up somewhere!"
They get passed around from institution to institution, but everyone eventually goes "Sorry, we can't keep them here", and it won't stop. Until, maybe, one day they're lucky and a fixed team of carers "adopts" them and tries to create some kind of assisted living from scratch.
Nobody talks about it, which is why it's always a big shock for parents who found a really good residential care place for their soon-to-be adult child and their child looks forward to moving out, and suddenly this wonderful residential care company turns their child down because it's too disabled. And then the next one. And the next.
So no, residential care isn't for "those with the most profound disabilities" - people with the most profound disabilities can't be in residential care at all.
// Shoutout to everyone with kleptomania. I also have it and I know how bad it can be. It gets better!
“Go to therapy” Are you gonna pay?
Oh Im a compulsive liar and it just never really occured to me that there are other compulsive liars? Like I knew logically that there are- but I just felt like I was different because I was lying about little things, not cheating on someone or something. Idk lol. I liked your post about it
Oh, well I’m happy my post helped you, kind traveler!! And if you wanna know something, compulsive liars are pretty much defined on how they lie about unimportant things! If someone lies for months about cheating on someone, that’s a pressure to lie—there’s a punishment if they don’t lie. But compulsive liars lie even when there is not punishment or reward for lying! Anyways, I’m glad that my tutorial/rant/confessional helped you!
Saying this as someone that absolutely loves silly cartoon thieves and goons, kleptomania is a compulsive disorder it's not the same thing as stealing for the need of money or becuz you're evil and fucked up
So stop calling thief characters kleptomaniacs, it's pretty frickin harmful for people that actually suffer that disorder :/
Not saying you cannot make a thief character a kleptomaniac,,but you need to know at least what the disorder is like and have some respect
So yeah, the raccoon brothers from happy tree friends are not kleptomaniacs even though so many people said that, they steal because they're evil and greedy, and if it's canon then it's a really bad stereotype or representation (flippy also is a really bad representation of a person with ptsd)
I just had a migraine visual aura stop as a tiny little speck and in literally a few seconds I would not properly see out of either eyes because the aura filled my vision that fast. I am not exaggerating, I noticed the tiny speck of aura and in the few seconds it took for me to grab my meds from my bag the aura spread to the point that I could not read. I think that's a world record and in related news, I am visiting urgent care as so as I am able to because what the fuck. That should not happen. I think is has something to do with my eye photophobia suddenly getting so much worse so quickly over the last few months. There might be something wrong with my eyes and I'm very worried
Raven, he/him, 20, multiple disabled (see pinned for more details.) This is my disability advocacy blog
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