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Endometriosis - Blog Posts

3 years ago

My personal comparison of two different endometriosis medications.

I was on Visanne for 2 months and had

•Spotting. Bled for 18 days straight after 3 days of spotting

•way worse back pain

•depression and anxiety from them fighting with sertrazine

•Migrain with aura +left arm and left side of face going numb. Heart palpitations and slurred speech

•abdominal pain, ovary bursting feeling

•brain fog, pure stupidity. Extreme confusion. "I'm lost!? Where am I!? Where was I going!?"

•swollen ankles, swollen painful breasts

•nausea

•dry spots!!!! Throat, collarbone, neck, face, lower back and butt

•hot flashes!!!

•very low sex drive + intimate dryness. Unbearable and depressing. But hey sex doesn't hurt now...

•insomnia + fatigue worse than before

•crazy fucking dreams. To much.

•Hot flashes

I've been on Orilissa for 3 months now and had

•hot flashes

•night sweats

I know not everyone's bodies are the same but holy fuck... I don't wish visanne on anybody. I was ready to throw down with my gynecologist.


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3 months ago

hey so it’s march now aka the beginning of endometriosis awareness month and i feel obligated to remind you that debilitatingly painful periods are not normal. if you or someone you know is ending up sick or bedridden every month, you are not crazy and deserve medical attention from someone who will take you seriously


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2 months ago

hey so it’s march now aka the beginning of endometriosis awareness month and i feel obligated to remind you that debilitatingly painful periods are not normal. if you or someone you know is ending up sick or bedridden every month, you are not crazy and deserve medical attention from someone who will take you seriously


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3 months ago

I wish everyone who has endometriosis a very charged heating pad, warm drink, and ibuprofen


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1 month ago

so i am now suspended for endometriosis and have been put on birth control to see if i react positively to it. i wont know if it works for another 3 weeks, but i was just wondering if anyone has any pain management tips? so far, i just have heating pads (rael ones you plug in the wall) and ibuprofen/acetaminophen (which i DONT take daily out of fear of developing stomach ulcers). any tips that don't require you to go out and buy anything too expensive? i don't want to buy anything expensive until i have a definitive diagnosis because my mom most likely wont let me (which makes sense).


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1 year ago

For all the people out there who are dealing with insane amounts of pain on a regular and frequent basis.

One of my friends fixed her endometriosis by changing her diet according to a Tibetan Healer’s recommendation.

Another fixed her debilitating monthly pain by cutting one ingredient out of her diet on an acupuncturist’s offhand advice.

And another finally went to her normal usual western doc and got some hormonal medication that makes it so she doesn’t pass out from pain anymore.

There is a solution! Find your cure!

whenever i have those brutal searing being-dissolved-from-inside period cramps during school or work i pretend i am a viking warlord who has been stabbed in the abdomen but i killed the assailant so i’m the only one who knows im injured and i have to carry on normally til the end of the battle to keep up my mens morale


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1 year ago

I swear to fuckin god if Im starting to get a endo flare up, i’m going to stab myself….My fuckin uterus hurts and I am not mentally stable enough for this bs.


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1 year ago

I swear having an endo flare up and fibro flare up at the same time is a bitch. I wanna die from the pain.


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7 months ago

sometimes it’s me and my heating pad against the world


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9 months ago

was bashed over the head with symptoms this morning. breakthrough bleeding, back, shoulder and hip pain, cramps, nausea.

i hate new meds! i hate being in pain and not being diagnosed.


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1 month ago
Proteomics nails near perfect results for endometriosis blood test
The Sydney Morning Herald
Proteomics International soared 24pc to 75c on news its PromarkerEndo test could successfully diagnose all stages of endometriosis, which af

This is fucking excellent news. Researchers in Australia have managed to achieve near perfect results for a blood test that can detect endometriosis.

Until now endometriosis has only been diagnosable through invasive abdominal surgery.

This is an amazing game changer.


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2 months ago

Pull - 298 words

second chronic illness themed @wolfstarmicrofic! this one featuring Remus with endometriosis for Endometriosis Awareness Month! CW for endo symptoms and mention of blood.

“C’mon, pull your shirt up.”

Remus drags his eyes away from the mindless comfort show on the TV screen. “What?”

Sirius sits down on the couch near his legs, curled tightly to his chest. “You heard me. Pull your shirt up.”

“Sirius,” Remus whines. He looks back at the television and curls his arms tighter around his lower abdomen, trying to absorb the warmth of the heating pad cradled there. “Leave me alone, it hurts.” An understatement if there ever was one. It’s like his uterus is a towel being wrung out until he cries, until he almost throws up, until he’s lost so much blood he’s dizzy with it.

A chilly hand cards gently through the curls falling over his forehead and Remus leans into the touch. “I know, baby, but I want to try something. Maybe it’ll help,” Sirius says.

And, well. He has Remus’s attention, but he’s still skeptical. “What is it?”

Sirius holds up a familiar brown tub of cream, one that Remus had bought for his joints and discarded months ago when it gave him no relief. “You haven’t tried it for this, have you?” Sirius asks.

Remus tilts his head, considering. No, he hasn’t. He doubts it will help, what with the big nothing it did everywhere else, but what does he have to lose by trying?

“Alright,” he agrees, and struggles to sit.

“No, no, hey, stay there. Just lift your shirt a bit for me,” Sirius says.

Remus does. Sirius insists on rubbing the cream into his pelvis for him, knowing how Remus hates the scent on his fingers.

Afterwards, Sirius settles into the opposite corner of the sofa, far enough to give Remus’s overheated body space, but close enough that he doesn’t feel alone. And Remus waits, and hopes.


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7 months ago

Mine developed from my endometriosis. Please, everyone, if your cicle is weird, you bleed to much, and feel pain in odd moments or have to intense cramps, ask for a magnetic ressonance. If your doctor gashlightes you saying it's nothing, change them. I've been suffering for years and it took me a decade to finally have my diagnosys

We all know what erectile dysfunction is but literally no one is ever taught what vaginismus is and it can cause people to feel extremely lost, broken, and cause people to take their own lives. Raise. Awareness.


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