people will be like "mental health matters <3" until someone has an "evil disorder"
to the disabled person who needs to hear this:
you don't have to earn or "deserve": resting, sleeping, taking your medications (including OTC meds, cannabis, creams, etc.), using your mobility aids, eating, declining to go to an event, choosing to stay home, having a self care/lazy day, or taking care of yourself in any other capacity. you can be good to yourself today.
this disability pride month, i ask that you include OCD on your mental illness positivity posts. for some reason we are rarely included in those. much love to all my OCD homies
There's only one real way to categorise disorders and it's when you google it and the first results fit into one or more of the following categories:
1. "Is your child-" "Does your child-" "How to cope with the burden of being a parent for-"
2. "How to get better: Step One: have a lot of money!" "How to get better: Step One: simply stop having it!"
3. "10 Ways To Spot Sickopaths With This Disorder So You Can Protect Yourself" "The Bad People Disease -by Dr. Eugene X."
Let's talk mobility aids!
Canes are for when you need to take a little bit of weight off of one side of your body, need a little help with balance, or need a little extra stability when you walk. It's an easy mobility aid to find and get, and it's pretty easy to figure out how to use. Have the cane sized so the handle sits at wrist level, then hold it on the opposite side to the one that hurts. Match your cane strikes to the steps on the hurt side. It will hurt your arm, elbow, and shoulder sometimes, but having a properly sized cane will help.
Rollators are kind of the "next step up" in support. They come with more restrictions, you get limited to ramps and stuff, but they're also the least restrictive wheeled mobility aid because they're light and easy to pick up and toss around. They also have a seat a lot of times and a basket so you don't need to carry stuff. They're for when you need a place to rest, something to lean on when you walk, better balance assistance than a cane, and less weight bearing than a cane. I also found that it helped me with fatigue quite a bit. There's two main kinds, euro style like the first, and regular like the second. There are other fancier ones but I'm covering the basics here.
Rollators are my favorite mobility aid and I've used everything from canes to a fancy high grade power chair. They're just the perfect balance of help and freedom. They provide so much support for how far they go.
Arm crutches are pretty neat! They're a lot more ergonomic than a cane. In fact, some people use a single arm crutch as a cane. They distribute the weight a little better, so it's not all on your wrists, and they support you better than a rollator can. The major cons I found are that they take two hands to use so you can't carry much and I had a really hard time trying to learn to walk with them. A lot of people who use forearm crutches have other mobility aids and use the forearm crutches when they want to or need to walk.
These are for when walking becomes more difficult than pushing a wheelchair. There's no weight being put on your legs and feet and depending on your needs, you can get really specific with your adaptations if you have a custom wheelchair verses a standard wheelchair. My first custom chair looked like a monster truck because i took in the woods and gravel, my second custom chair after I got sicker has a head rest, a backrest that holds me up, and a little electric box that I can attach that helps me push. The difference between getting a standard and custom wheelchair is dependent on how much money the user has, what kind of needs they have, and what kind of medical access they have. (One is not more "real" than the other.) I highly recommend getting a cushion for under your butt if you have a standard chair without a cushion, I used a standard full time for 6 months and a cushion made a huge difference.
Mobility scooters are for people who can't walk long distances, but can still walk with the help of a cane or unassisted. If you can walk around your house, but not really much else, a mobility scooter might be the aid for you! There's a lot of different styles and battery life lengths and handling abilities so try a few different scooters out if you can.
Powerchairs come in a couple different types or "groups" depending on your needs. Group 1 is the kind of chair you're probably most familiar with. It's basically for someone who needs a powerchair to get around their house, the doctors, office, and grocery store. You can't do any custom seat cushions or anything, but it's for people who don't need it. Think of like... someone who can walk pretty okay still, it just hurts to walk or they're off balance or a little weak feeling. A lot of times more elderly people will use these, if you're more active look into group 2
Group two chairs are little more durable, a little more stable, sometimes you can switch the captains seats out for custom seating... They're what a full time powerchair user would use if they don't need specialty functions like tilt or recline. They also often have 6 wheels rather than 4 like the group 1 chairs have.
Group 3 powerchairs are reserved for specific diagnoses like muscular dystrophy, ALS, and other severe neurological and neuromuscular illnesses. These are also called "rehab" chairs because they're for making sure severely disabled people have quality of life. The tilt function is for pressure relief, though you can also get things like elevation so you can raise and lower your chair, and some of them can recline flat. There are other avenues of moving grade 3 power chairs beyond the joystick as well in case someone can't use their hands or doesn't have them. (Head controls, torso controls, and straw controls called sip and puff are alternatives.) They can go on a little worse terrain than group 1 and two chairs and go a little farther, but if they get stuck they weigh 350 lbs and it's awful.
There's a few other types of mobility aid that I don't know enough about, like ankle foot orthotics and gait trainers, but these are the basic "mobility aid" most people will come across.
yall are pro mental illness until they hallucinate
yall are pro mental illness until they dissociate
yall are pro mental illness until they self-isolate
yall are pro mental illness until they're paranoid
yall are pro mental illness until they split
yall are pro mental illness until it's too Scary for your comparatively neurotypical brain to handle
Please, if you can, take a moment to read and share this because I feel like I'm screaming underwater.
NPD (Narcissistic Personality Disorder) stigma is rampant right now, and seems to be getting progressively worse. Everyone is using it as a buzzword in the worst ways possible, spreading misinformation and hatred against a real disorder.
I could go on a long time about how this happened, why it's factually incorrect (and what the disorder actually IS), why it's harmful, and the changes I'd like to see. But to keep this concise, I'll simply link to a few posts under the cut for further reading.
The point of this post is a plea. Please help stop the spread of stigma. Even in mental health communities, even around others with personality disorders, in neurodivergent "safe" spaces, other communities I thought people would be supportive in (e.g. trans support groups, progressive spaces in general), it keeps coming up. So I'm willing to bet that a lot of people on this site need to see this.
Because it's so hard to exist in this world.
My disorder already makes me feel as if I'm worthless and unlovable, like there's something inherently wrong and damaged about me. And it's so much harder to fight that and heal when my daily life consists of:
Laughing and spending time with my friends, doing my utmost best to connect and stay present and focused on them, trying to let my guards down and be real and believe I'm lovable- when suddenly they throw out the word "narcissist" to describe horrible people or someone they hate, or the conversation turns to how evil "people with narcissistic personality disorder" are. (Seriously, you don't know which of your friends might have NPD and feels like shit when you say those things & now knows that you'd hate them if you knew.)
Trying to look up "mental health positivity for people with npd", "mental health positivity cluster bs", only to find a) none of that, and b) more of the same old vile shit that makes me feel terrible about myself.
Having a hard time (which is constant at this point) and trying to look up resources for myself, only to again, find the same stigma. And no resources.
Not having any clue how to help myself, because even the mental health field is spitting so much vitriol at people with DISORDERS (who they're supposed to be helping!) that there's no solid research or therapy programs for people like me.
Losing close friends when they find out, despite us having had a good relationship before, and them KNOWING me and knowing that I'm not like the trending image of pwNPD. Because now they only see me through the lens of stigma and misinformation.
Hearing the same stigma come up literally wherever I go. Clubs. Meetings. Any online space. At the bus stop. At the mall. At a restaurant. At work. Buzzword of the year that everyone loooves loudly throwing around with their friends or over the phone. Feels awesome for me, makes my day so much better/s
I could go on for a long time, but I'm scared no one will read/rb this if it gets too much longer.
So please. Stop using the word "narcissist" as a synonym for "abusive".
Stop bringing up people you hate who you believe to have NPD because of a stigmatizing article full of misinformation whenever someone with actual NPD opens their mouth. (Imagine if people did that with any other disorder! "Hey, I'm autistic." "Oh... my old roommate screamed at me whenever I made noise around him, and didn't understand my needs, which seems like sensory overload and difficulty with social cues. He was definitely autistic. But as long as you're self-aware and always restraining your innate desire to be an abusive asshole, you're okay I guess, maybe." ...See how offensive and ignorant that is?)
Stop preventing healthcare for people with a disorder just because it's trendy to use us as a scapegoat.
If you got this far, thank you for reading, and please share this if you can. Further reading is under the cut.
NPD Criteria, re-written by someone who actually has NPD
Stigma in the DSM
Common perception of the DSM criteria vs how someone may actually experience them (Keep in mind that this is the way I personally experience these symptoms, and that presentation can vary a lot between individuals)
"Idk, the stigma is right though, because I've known a lot of people with NPD who are jerks, so I'm going to continue to support the blockage of treatment for this condition."
(All of these were written by me, because I didn't want to link to other folks' posts without permission, but if you want to add your own links in reblogs or replies please feel free <3)
There are no disabilities which are raised above ableism. The person in the wheelchair, the autistic person, the person with schizophrenia and the person with an invisible chronic illness may all experience society's ableism in different ways, but none of them can expect to avoid it. So the "you wouldn't say X to Y" advocacy needs to retire yesterday. They say all kinds of ableist shit to all of us and it's time to try out some actual solidarity instead of arguing about who has it slightly worse
Quick visual guide on what to include when writing alt text (Taken from this article by Veroniiiica):
[Image description: An infographic titled “Writing Alt Text” featuring a photo of a capybara. Parts of alt text are divided by color, including identify who, expression, description, colour, and interesting features. The finished description reads “A capybara looking relaxed in a hot spa. Yellow yuzu fruits are floating in the water, and one is balanced on the top of the capybara’s head.” End of image description.]
If you use a screen reader and there's anything else you like image descriptions to have that isn't detailed here, feel free to add! I will rb additions :) I also implore you to check out the original article for more info!
i love you autistics who can't control their volume . i love you autistics who struggled with/never understood "inside voice" . i love you autistics that yell to communicate their wants and needs . i love you autistics that stim loudly . i love you autistics who make noise .
we are loved . we deserve to be heard and accommodated for .
i love you autistics who don't have special interests
I love you autistics without sensory issues
i love you autistics who are hyposenstive
i love you autistics who are both hypo- and hypersensitive
I love you autistics who hate routine
i love you low empathy autistics
i love you high empathy autistics
I love you autistics with lots of freinds
I love you autistics who are hyper verbal
i love you autistics who make lots of eye contact
i love you autistics who can't mask
i love you autistics who dont know who they aren't behind their mask
i love autistics who are "childish"
i love autistics that have never had a meltdown
i love autistics with catatonia
i love autistics with intellectual disabilities
i love autistics with Anxiety and/or Depression
i love autistics with Psychotic Disorders
i love autistics with Bipolar Disorders
i love autistics with Obsessive-Compulsive Disorders
i love autistics with truma Disorders
i love autistics with Dissociative Disorders
i love autistics with Eating Disorders
i love autistics with Somatic symptoms Disorders
i love autistics with Sleep Disorders
i love autistics with addictions
i love autistics with Personality Disorders
i loved autistic systems
i love autistics with multiple disabilities
i love autistics that can't work
i love autistics that cant leave their house
I love autistics who can't live alone
i love autistics who use AAC
i love poc autistics
i love people with autism who prefer person first language
i love autistics who use function labels
i love autistics with outdated diagnoses
i love autistics who were/are misdignosied
i love self diagnosed autistics
i love all autistic people
[Header Image ID: The disability pride month. It's dark gray with five diagonal stripes, in the following colors: red, yellow, white, blue and green. ]
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