Fishability - Disability Awareness, Access, And Positivity

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5 months ago

I realized the other day that the reason I didn't watch much TV as a teenager (and why I'm only now catching up on late aughts/early teens media that I missed), is because I literally didn't understand how to use our TV. My parents got a new system, and it had three remotes with a Venn diagram of functions. If someone left the TV on an unfamiliar mode, I didn't know how to get back to where I wanted to be, so I just stopped watching TV on my own altogether.

I explained all this to my therapist, because I didn't know if this was more related to my then-unnoticed autism, or to my relationship with my parents at the time (we had issues less/unrelated to neurodivergency). She told me something interesting.

In children's autism assessments, a common test is to give them a straightforward task that they cannot reasonably perform, like opening an overtight jar. The "real" test is to see, when they realize that they cannot do it on their own, if they approach a caregiver for help. Children that do not seek help are more likely to be autistic than those that do.

This aligns with the compulsory independence I've noticed to be common in autistic adults, particularly articulated by those with lower support needs and/or who were evaluated later in life. It just genuinely does not occur to us to ask for help, to the point that we abandon many tasks that we could easily perform with minor assistance. I had assumed it was due to a shared common social trauma (ie bad experiences with asking for help in the past), but the fact that this trait is a childhood test metric hints at something deeper.

My therapist told me that the extremely pathologizing main theory is that this has something to do with theory of mind, that is doesn't occur to us that other people may have skills that we do not. I can't speak for my early childhood self, or for all autistic people, but I don't buy this. Even if I'm aware that someone else has knowledge that I do not (as with my parents understanding of our TV), asking for help still doesn't present itself as an option. Why?

My best guess, using only myself as a model, is due to the static wall of a communication barrier. I struggle a lot to make myself understood, to articulate the thing in my brain well enough that it will appear identically (or at least close enough) in somebody else's brain. I need to be actively aware of myself and my audience. I need to know the correct words, the correct sentence structure, and a close-enough tone, cadence, and body language. I need draft scripts to react to possible responses, because if I get caught too off guard, I may need several minutes to construct an appropriate response. In simple day-to-day interactions, I can get by okay. In a few very specific situations, I can excel. When given the opportunity, I can write more clearly than I am ever capable of speaking.

When I'm in a situation where I need help, I don't have many of my components of communication. I don't always know what my audience knows. I don't have sufficient vocabulary to explain what I need. I don't know what information is relevant to convey, and the order in which I should convey it. I don't often understand the degree of help I need, so I can come across inappropriately urgent or overly relaxed. I have no ability to preplan scripts because I don't even know the basic plot of the situation.

I can stumble though with one or two deficiencies, but if I'm missing too much, me and the potential helper become mutually unintelligible. I have learned the limits of what I can expect from myself, and it is conceptualized as a real and physical barrier. I am not a runner, so running a 5k tomorrow does not present itself as an option to me. In the same way, if I have subconscious knowledge that an interaction is beyond my capability, it does not present itself as an option to me. It's the minimum communication requirements that prevent me from asking for help, not anything to do with the concept of help itself.

Maybe. This is the theory of one person. I'm curious if anyone else vibes with this at all.


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1 year ago

I think wed all benefit if everyone on this website learned that sex work isn’t just part of a feminist issue, it’s part of a modern cultural erasure of sex and pleasure and a class antagonism that has been fostered since the advent of capitalism, and more importantly: I like my fucking job


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11 months ago
So Many People Wouldn’t Have Asthma In The First Place If It Wasn’t For These Corporations…Shifting
So Many People Wouldn’t Have Asthma In The First Place If It Wasn’t For These Corporations…Shifting
So Many People Wouldn’t Have Asthma In The First Place If It Wasn’t For These Corporations…Shifting

So many people wouldn’t have asthma in the first place if it wasn’t for these corporations…Shifting blame from actual culprits to people with asthma (and people who can’t help but use plastic straws at that) is peak capitalism.


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3 months ago

We need shittable cities (actively maintained public restrooms).


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1 year ago

one of my absolute favorite conversations i have with random gentiles goes like this:

me: i face a lot of harassment and weirdness when i wear a kippah and star of david in public.

gentile: ok but u could just not wear them.

me: i mean yeah but i do.

gentile: but u could just not wear them and then ppl wouldn’t harass u and be weird to u.

me: yeah maybe but i do wear them.

gentile: but u have the option not to.

me: correct. but i choose the option to wear them.

gentile: but if u didn’t wear them then no one would know.

me: sure. but i do wear them.

and it goes round and round and round in a circle for like 20 minutes bc goyim cannot comprehend why i would not want to just shut up and assimilate.

anyway here’s ur reminder that telling ppl who are being oppressed or discriminated against to just hide whatever it is that people are targeting them for is contributing to said oppression and discrimination. forced assimilation is violence, and telling people “just don’t do/wear/say x thing that’s a core part of your identity” makes you complicit in that violence, if not actively a part of it.


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5 months ago

btw while people continue to fight the system don't forget about Undue Medical Debt (formerly RIP Medical Debt), a charity that buys and forgives medical debt. on average a donation of $10 will forgive $1,000 of medical debt.


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1 year ago

"ai is making it so everyone can make art" Everyone can make art dipshit it came free with your fucking humanity


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1 year ago

The Dance of a Thousand Hands.


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fishability - Disability Awareness, Access, and Positivity
Disability Awareness, Access, and Positivity

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