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Alzheimers - Blog Posts

2 years ago

somedays turned upside down as I'd drive him through town... he'd always remembered her though, in that dancing gown.


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Stop taking people with dementia to the cemetery

Stop Taking People With Dementia To The Cemetery

“Oh yeah, every time that dad forgets mom is dead, we head to the cemetery so he can see her gravestone.”

WHAT. I can’t tell you how many times I’ve heard some version of this awful story. Stop taking people with dementia to the cemetery. Seriously. I cringe every single time someone tells me about their “plan” to remind a loved one that their loved one is dead.

I also hear this a lot: “I keep reminding mom that her sister is dead, and sometimes she recalls it once I’ve said it.” That’s still not a good thing. Why are we trying to force people to remember that their loved ones have passed away?

If your loved one with dementia has lost track of their timeline, and forgotten that a loved one is dead, don’t remind them. What’s the point of reintroducing that kind of pain? Here’s the thing: they will forget again, and they will ask again. You’re never, ever, ever, going to “convince” them of something permanently. 

Instead, do this:

“Dad, where do you think mom is?”

When he tells you the answer, repeat that answer to him and assert that it sounds correct. For example, if he says, “I think mom is at work,” say, “Yes, that sounds right, I think she must be at work.” If he says, “I think she passed away,” say, “Yes, she passed away.” 

People like the answer that they gave you. Also, it takes you off the hook to “come up with something” that satisfies them. Then, twenty minutes later, when they ask where mom is, repeat what they originally told you.


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10 years ago

Eternal Sunshine

My grandmother is slowly beginning to lose her memory. No, she hasn’t been diagnosed with anything because she refuses to see a doctor, but every now and then she will ask me the same questions over and over again. Like, “hows grad school?” and I’ll tell her I graduated over a year ago and she’ll congratulate me for the 5th time and I’ll just nod my head and say thank you. The bright side is she’ll offer me 4 or 5 slices of pie and serve each one to me like its the first as long as I sit through the same story that she’ll tell to me 3 or 4 times. I try to act just as surprised as the first time I heard them.

Eventually she starts to do things like leave the oven on, and forget who she’s talking to on the phone, and what day it is, and what she had for dinner last night, and how to get home when she goes somewhere she hasn’t been in a while, and everybody else thinks this is a reason for concern. Except me. Because I see the beauty in slowly losing your memory as you get older.

There is a certain magic in forgetfulness that God rewards us with if we are fortunate enough to make it into old age. Because after a few years of the mundane every day is something new. An opportunity to experience old things for the first time as those bad memories fade away. In her mind, there is eternal sunshine and that's all any of us really want anyway. The look of surprise on her face every time I tell her I already got my degree means, to her, every other Sunday is graduation.

Every visitor is in town for a holiday. Every birthday is a surprise when you wake up and don’t know why everyone you know is calling you to tell you they love you and every package you ordered is like a present to yourself. You no longer recognize people in old photographs. There is no more living in the past. No regretting old mistakes or wishing you had second chances because as far as you know, you’re still on plan A and everything worked out exactly the way it was supposed to be. Beautifully.

Until that day we wake up on a beach in Montauk and feel everything fading from our memory we will drag our regrets to the shore and relive our mistakes over and over until we bury them in the sand and treat every morning as an opportunity to start over. 

Just don't forget who I am. 


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7 years ago

Alzheimer's Disease linked to the metabolism of unsaturated fats

A new study published in PLOS Medicine’s Special Issue on Dementia has found that the metabolism of omega-3 and omega-6 unsaturated fatty acids in the brain are associated with the progression of Alzheimer’s disease.

Alzheimer's Disease Linked To The Metabolism Of Unsaturated Fats

Alzheimer’s disease is a neurodegenerative disorder, which causes impaired memory, executive function and language. It accounts for 60 - 80% of total dementia cases worldwide, with over 46 million people suffering from the disease worldwide. The number of patients is estimated to rise to 131.5 million by 2050.

Currently it is thought that the main reason for developing memory problems in dementia is the presence of two big molecules in the brain called tau and amyloid proteins. These proteins have been extensively studied and have been shown to start accumulating in the brain up to 20 years prior to the onset of the disease. However, there is limited information on how small molecule metabolism in the brain is associated with the development and progression of Alzheimer’s disease.

In this study, researchers from King’s College London and the National Institute on Aging in the United States looked at brain tissue samples from 43 people ranging in age from 57 to 95 years old. They compared the differences in hundreds of small molecules in three groups: 14 people with healthy brains, 15 that had high levels of tau and amyloid but didn’t show memory problems and 14 clinically diagnosed Alzheimer’s patients.

They also looked at three different areas in the brain, one that usually shows little tau and amyloid, one that shows more tau and another that shows more amyloid. The main molecules that were different were six small fats, including omegas, which changed in abundance in different regions of the brain.

They found that unsaturated fatty acids were significantly decreased in Alzheimer’s brains when compared to brains from healthy patients.

Co-lead author of the study, Dr Cristina Legido Quigley from King’s College London said: “While this was a small study, our results show a potentially crucial and unexpected role for fats in the onset of dementia. Most surprisingly we found that a supposedly beneficial omega3, DHA, actually increased with the progression of the disease.

“It is now important for us to build on and replicate these findings in a larger study and see whether it corroborates our initial findings.”


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