You’re Still Chronically Ill If You Have A Good Day. You’re Still Valid. Your Chronic Illness Is

Let's talk mobility aids!

Canes

Canes are for when you need to take a little bit of weight off of one side of your body, need a little help with balance, or need a little extra stability when you walk. It's an easy mobility aid to find and get, and it's pretty easy to figure out how to use. Have the cane sized so the handle sits at wrist level, then hold it on the opposite side to the one that hurts. Match your cane strikes to the steps on the hurt side. It will hurt your arm, elbow, and shoulder sometimes, but having a properly sized cane will help.

Rollators

Rollators are kind of the "next step up" in support. They come with more restrictions, you get limited to ramps and stuff, but they're also the least restrictive wheeled mobility aid because they're light and easy to pick up and toss around. They also have a seat a lot of times and a basket so you don't need to carry stuff. They're for when you need a place to rest, something to lean on when you walk, better balance assistance than a cane, and less weight bearing than a cane. I also found that it helped me with fatigue quite a bit. There's two main kinds, euro style like the first, and regular like the second. There are other fancier ones but I'm covering the basics here.

Rollators are my favorite mobility aid and I've used everything from canes to a fancy high grade power chair. They're just the perfect balance of help and freedom. They provide so much support for how far they go.

Crutches

Arm crutches are pretty neat! They're a lot more ergonomic than a cane. In fact, some people use a single arm crutch as a cane. They distribute the weight a little better, so it's not all on your wrists, and they support you better than a rollator can. The major cons I found are that they take two hands to use so you can't carry much and I had a really hard time trying to learn to walk with them. A lot of people who use forearm crutches have other mobility aids and use the forearm crutches when they want to or need to walk.

Manual Wheelchairs

These are for when walking becomes more difficult than pushing a wheelchair. There's no weight being put on your legs and feet and depending on your needs, you can get really specific with your adaptations if you have a custom wheelchair verses a standard wheelchair. My first custom chair looked like a monster truck because i took in the woods and gravel, my second custom chair after I got sicker has a head rest, a backrest that holds me up, and a little electric box that I can attach that helps me push. The difference between getting a standard and custom wheelchair is dependent on how much money the user has, what kind of needs they have, and what kind of medical access they have. (One is not more "real" than the other.) I highly recommend getting a cushion for under your butt if you have a standard chair without a cushion, I used a standard full time for 6 months and a cushion made a huge difference.

Mobility scooters

Mobility scooters are for people who can't walk long distances, but can still walk with the help of a cane or unassisted. If you can walk around your house, but not really much else, a mobility scooter might be the aid for you! There's a lot of different styles and battery life lengths and handling abilities so try a few different scooters out if you can.

Powerchairs

Powerchairs come in a couple different types or "groups" depending on your needs. Group 1 is the kind of chair you're probably most familiar with. It's basically for someone who needs a powerchair to get around their house, the doctors, office, and grocery store. You can't do any custom seat cushions or anything, but it's for people who don't need it. Think of like... someone who can walk pretty okay still, it just hurts to walk or they're off balance or a little weak feeling. A lot of times more elderly people will use these, if you're more active look into group 2

Group two chairs are little more durable, a little more stable, sometimes you can switch the captains seats out for custom seating... They're what a full time powerchair user would use if they don't need specialty functions like tilt or recline. They also often have 6 wheels rather than 4 like the group 1 chairs have.

Group 3 powerchairs are reserved for specific diagnoses like muscular dystrophy, ALS, and other severe neurological and neuromuscular illnesses. These are also called "rehab" chairs because they're for making sure severely disabled people have quality of life. The tilt function is for pressure relief, though you can also get things like elevation so you can raise and lower your chair, and some of them can recline flat. There are other avenues of moving grade 3 power chairs beyond the joystick as well in case someone can't use their hands or doesn't have them. (Head controls, torso controls, and straw controls called sip and puff are alternatives.) They can go on a little worse terrain than group 1 and two chairs and go a little farther, but if they get stuck they weigh 350 lbs and it's awful.

There's a few other types of mobility aid that I don't know enough about, like ankle foot orthotics and gait trainers, but these are the basic "mobility aid" most people will come across.

If you use another type of mobility aid and want to educate people, add it on!!

sick of people watering down mental illnesses online.

people who are severely mentally unwell are likely to do things that are unhealthy, irrational and sometimes just completely fucked up. that is the reality of severe mental illness, especially if left untreated.

we may do things that are harmful or damaging to others, this doesn’t make us dangerous or evil, this makes us ill. if you cannot handle the fact that fucked up people might do fucked up things as a result of their severely shattered mental state, then do not surround yourself with people who are mentally ill. don’t make your inability to accept the severity of my mental state into my fucking problem.

Autism acceptance includes accepting all autistic manners of communication.

That means supporting autistic people who talk in a "very childish" way. (I do this a lot irl)

Autistic people who do "TV talking" (this means talking like a character from your favorite media,basically talking in quotes and copying their speech patterns,as far as I know)

Autistic people who use echolia.

Autistic people who are very awkward/quirky when they communicate.

Autistic people who are overly technical,or have very sophisticated and articulate speech.

Autistic people who mumble.

Autistic people who talk really fast.

Autistic people who can't control their tone of voice/inflection.

Autistic people who talk in a monotone voice.

Autistic people who use different kind of sounds,or body language to communicate.

Autistic people who talk slowly and draw out their syllables.

Autistic people who use a lot of sentance fillers.

Autistic people who use Aac devices,communication cards,etc etc.

Edit: acceptance of nonverbal autistics is also necessary. Nonverbal people deserve love,respect,acceptance,accommodation and support.

I will be the first to admit that I’m not a good friend. I forget people exist, therefore I don’t text them. I don’t call them. I don’t acknowledge them.

I forget people are…people. To me most the time, everyone is just people that float around. People that help me as I float too. It sucks. I wish I saw people as more. I wish I had friends.

I’ll be the first to admit that I have disorders that cause me to not be a good friend. They aren’t excuses, but explanations. I try my best, yes. But sometimes my best just isn’t good enough. That’s ok. I’m content with that at the moment. However, I work everyday to get better and be a better friend. A better brother. A better person.

shaking myself (very gently) . being in pain takes a lot of energy!!!!!! being in pain is exhausting!!!!!!! you are not lazy or weak because you need to spend so much time resting, this is your body coping with how much pain you’re in literally 24/7!!!!!!!!!

Writing Accessibility PSA

Please avoid using long strings of characters as line breaks in your writing - these are not screen reader/TTS friendly!

Every ‘°’ will be read as ‘degree’ - can you imagine how long it takes to read out a string of 25? Let alone more complicated combinations of characters (eg. imagine listening to TTS read out ~*~ |°| ~*~ multiple times per line break)?

A good rule of thumb is to stick with short, 2-3 character line breaks (eg. I don’t find — or *** too egregious to listen to). Your readers can tell there’s been a scene change whether you use two or twenty em-dashes, but if you use twenty, some of us might have to listen for 30 seconds to read the next scene. If you’re more concerned about aesthetics, you can insert an image of your aesthetically pleasing line break with alt text simply reading ‘line break’ for accessibility.

Don’t feel bad if this is something you’ve never thought about before - now you know better and can make your writing more accessible moving forward!

I would like to invite any other screenreader users to add their own thoughts or preferences to this post. We’re not a monolith and there’s a variety to how different softwares interact with repeating character strings and images with alt text, so there’s bound to be some conflicting opinions on what I’ve suggested above. Let’s try to make the stories we share accessible for everyone :]

"All autistics have low empathy" - This statement is wrong.

"Autistics having low empathy is a MYTH, we actually have HIGH empathy!" - This statement is ALSO wrong.

Autistics can have low empathy, they can have high empathy, they can have learned empathy. The myth would be that all autistics only experience one end of the empathy spectrum.

In spreading around misinformation that autistics actually have high empathy, you are disregarding the autistics who do have low empathy. And vice versa.

Disability will have you thinking shit like “I’m not even that disabled. I can manage as long as I limit myself to very specific careers, never go shopping for more than an hour or two at a time, keep my plans open so I can cancel and stay in if need be, and only go out a few nights per week at the most”

I need non autistic people to realise meltdowns are a real debilitating thing that has a serious effect on your mental and physical health NOWWWWW!!! The way its been trivialized and lessened pisses me the fuck off. It's not a tantrum and it doesn't come from "being too weak-willed" it's painful and it's embarrassing AND MOST OF ALL IT'S INVOLUNTARY!! Don't claim to be an ally to autistic or disabled people and then make fun of people who have meltdowns. Literally get the hell out of my sight

Please, if you can, take a moment to read and share this because I feel like I'm screaming underwater.

NPD (Narcissistic Personality Disorder) stigma is rampant right now, and seems to be getting progressively worse. Everyone is using it as a buzzword in the worst ways possible, spreading misinformation and hatred against a real disorder.

I could go on a long time about how this happened, why it's factually incorrect (and what the disorder actually IS), why it's harmful, and the changes I'd like to see. But to keep this concise, I'll simply link to a few posts under the cut for further reading.

The point of this post is a plea. Please help stop the spread of stigma. Even in mental health communities, even around others with personality disorders, in neurodivergent "safe" spaces, other communities I thought people would be supportive in (e.g. trans support groups, progressive spaces in general), it keeps coming up. So I'm willing to bet that a lot of people on this site need to see this.

Because it's so hard to exist in this world.

My disorder already makes me feel as if I'm worthless and unlovable, like there's something inherently wrong and damaged about me. And it's so much harder to fight that and heal when my daily life consists of:

Laughing and spending time with my friends, doing my utmost best to connect and stay present and focused on them, trying to let my guards down and be real and believe I'm lovable- when suddenly they throw out the word "narcissist" to describe horrible people or someone they hate, or the conversation turns to how evil "people with narcissistic personality disorder" are. (Seriously, you don't know which of your friends might have NPD and feels like shit when you say those things & now knows that you'd hate them if you knew.)

Trying to look up "mental health positivity for people with npd", "mental health positivity cluster bs", only to find a) none of that, and b) more of the same old vile shit that makes me feel terrible about myself.

Having a hard time (which is constant at this point) and trying to look up resources for myself, only to again, find the same stigma. And no resources.

Not having any clue how to help myself, because even the mental health field is spitting so much vitriol at people with DISORDERS (who they're supposed to be helping!) that there's no solid research or therapy programs for people like me.

Losing close friends when they find out, despite us having had a good relationship before, and them KNOWING me and knowing that I'm not like the trending image of pwNPD. Because now they only see me through the lens of stigma and misinformation.

Hearing the same stigma come up literally wherever I go. Clubs. Meetings. Any online space. At the bus stop. At the mall. At a restaurant. At work. Buzzword of the year that everyone loooves loudly throwing around with their friends or over the phone. Feels awesome for me, makes my day so much better/s

I could go on for a long time, but I'm scared no one will read/rb this if it gets too much longer.

So please. Stop using the word "narcissist" as a synonym for "abusive".

Stop bringing up people you hate who you believe to have NPD because of a stigmatizing article full of misinformation whenever someone with actual NPD opens their mouth. (Imagine if people did that with any other disorder! "Hey, I'm autistic." "Oh... my old roommate screamed at me whenever I made noise around him, and didn't understand my needs, which seems like sensory overload and difficulty with social cues. He was definitely autistic. But as long as you're self-aware and always restraining your innate desire to be an abusive asshole, you're okay I guess, maybe." ...See how offensive and ignorant that is?)

Stop preventing healthcare for people with a disorder just because it's trendy to use us as a scapegoat.

If you got this far, thank you for reading, and please share this if you can. Further reading is under the cut.

NPD Criteria, re-written by someone who actually has NPD

Stigma in the DSM

Common perception of the DSM criteria vs how someone may actually experience them (Keep in mind that this is the way I personally experience these symptoms, and that presentation can vary a lot between individuals)

"Idk, the stigma is right though, because I've known a lot of people with NPD who are jerks, so I'm going to continue to support the blockage of treatment for this condition."

(All of these were written by me, because I didn't want to link to other folks' posts without permission, but if you want to add your own links in reblogs or replies please feel free <3)